Cystic Fibrosis News Today Forums | Raphaël | Activity https://cysticfibrosisnewstoday.com/forums/members/ktruc/activity/ Activity feed for Raphaël. Sat, 04 Apr 2026 09:20:34 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 a88079e0d47ca2627938c58ee3bc2d45 Raphaël started the discussion One year later :) in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/one-year-later/ Fri, 05 Feb 2021 11:56:31 -0600 One year later :)

Hello

I am 45 years old, I live in France and I have 2 young children (3.5 and 6 years old). I have been taking trikafta for a year now. it’s very good, i can play sports with much less difficulty now and i can play with my children easily too 🙂 which is great.
my vems before was 1.10 L (32%) and vital capacity 2.10 (50%)
now vems is 1.5… Read more

]]> d0dbfceb04b24cfe2ac55d38120f59d2 Raphaël changed their profile picture https://cysticfibrosisnewstoday.com/forums/activity/p/3942/ Fri, 20 Nov 2020 19:41:49 -0600 0 687e6d746a98b78938b9613e8dafc313 Raphaël posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/3934/#acomment-3941 Fri, 20 Nov 2020 19:37:25 -0600 hello Jenny, thanks a lot 🙂 i am 45 with CF and i am french.

yes i will ask some questions about Trikafta in the forum (i started this good product 10 months ago). I will try to make myself understood as english is not my langage 🙂

see you soon.

    In reply to - Raphaël became a registered member ]]>         162217604a4e35f8ba73a9e80fab067d Raphaël became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/3934/ Fri, 20 Nov 2020 16:57:35 -0600 3