Cystic Fibrosis News Today Forums | Lise Hunter | Activity https://cysticfibrosisnewstoday.com/forums/members/legolise/activity/ Activity feed for Lise Hunter. Sat, 18 Apr 2026 15:30:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 ed7b5733efc38c6a16536479d97a0a38 Lise Hunter replied to the discussion CF Patients Are Living Longer, But Heathcare Costs Are Rising Too in the forum Regimens, Medicines, and Physiotherapy https://cysticfibrosisnewstoday.com/forums/forums/topic/cf-patients-are-living-longer-but-heathcare-costs-are-rising-too/#post-11602 Sat, 30 Mar 2019 23:25:17 -0500 Reply to CF Patients Are Living Longer, But Heathcare Costs Are Rising Too

Recently very disappointed at grand daughters last cf clinic appt. She just turned 7 yrs old and so far she’s not been hospitalized. Our disappointment was when we asked an out starting her on Orkambi. She has correct genes codes but we were told it’s too expensive and not covered. I asked how much and the nurse 250000.yearly. well we… Read more

]]> 304aad713b796ed709841f093d3bdd6f Lise Hunter became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/328/ Tue, 15 Jan 2019 17:33:04 -0600 2