Cystic Fibrosis News Today Forums | scrappy | Activity https://cysticfibrosisnewstoday.com/forums/members/linda/activity/ Activity feed for scrappy. Wed, 13 May 2026 10:10:26 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 f4d5fe076ccb7fd64f09c95d514b9dbf scrappy replied to the discussion Experiences with Alyftrek in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/experiences-with-alyftrek/#post-20024 Thu, 11 Dec 2025 20:04:20 -0600 Reply to Experiences with Alyftrek

I’m so glad Trikafta is helpful for you! It helped me some but not significantly and I do believe it gave me more anxiety.

]]> 5e3d66f404225ba7a5ea32c6c8139d7a scrappy started the discussion Alyftrek side effects in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/alyftrek-side-effects/ Fri, 05 Dec 2025 21:26:35 -0600 Alyftrek side effects

hello, I was wondering if anyone has experienced diarrhea and dizziness after starting Alyftrek and if so, did it subside??? I’m on my 9th day of the med. Any input would be really appreciated

Thank you!

]]> ad1925acc21cb7ba2ce6c569c543cfcd scrappy wrote a new item Fri, 05 Dec 2025 21:26:35 -0600 hello, I was wondering if anyone has experienced diarrhea and dizziness after starting Alyftrek and if so, did it subside??? I’m on my 9th day of the med. Any input would be really appreciated

Thank you!

]]> 0 45a6b76628d08c6cd98a940a9f75a87f scrappy replied to the discussion Experiences with Alyftrek in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/experiences-with-alyftrek/#post-20018 Mon, 01 Dec 2025 01:24:19 -0600 Reply to Experiences with Alyftrek

Hi. I’ve been looking for this topic today as I only started Alyftrek 5 days ago and today feel like I have the flu low grade fever and really bad chills etc. how do you know if it’s the drug or not?

]]> 993343d9a67ebdadf9e2549b04306a9c scrappy replied to the discussion What words or phrases bother you? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/what-words-or-phrases-bother-you/#post-19810 Fri, 18 Apr 2025 20:03:58 -0500 Reply to What words or phrases bother you?

words and phrases that bother me are being called a CFer, a cystic, those people, sick person, well ya look great

]]> d84778bc0260bbec9e1f8901bbbcad48 scrappy replied to the discussion Have you helped comfort others during their time of need? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/have-you-helped-comfort-others-during-their-time-of-need/#post-19809 Fri, 18 Apr 2025 20:01:59 -0500 Reply to Have you helped comfort others during their time of need?

This is interesting for me, because even though I have CF I don’t experience that much support as one would think. As a child, I became a care taker due to many reasons and as I grew so did my care taking. I’m very comfortable with being there for someone when there ill. I’ve been to the bedside of friends dying from cancer, to my parents,…

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]]> d227c66f56f652955ccc0d54994e85a3 Linda Bowmam changed their profile picture https://cysticfibrosisnewstoday.com/forums/activity/p/7003/ Mon, 27 Mar 2023 23:59:38 -0500 0 18d3e9066518307369423e329a2e4690 scrappy became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/1347/ Fri, 31 May 2019 11:04:27 -0500 1