• Hi Luisa, the link you have given above for parents and caregivers does not work for me…. is this forum now open? Thanks!


    lizzy x

  • Hi, I am Lizzy. I have 3 kids, and my eldest, Isaac, has CF. We had IVF and pre-implantation genetic diagnosis to conceive our daughters, ensuring that they do not. We live in the U.K.

    Isaac has had a rough year, six courses of IVs, and a spell in PICU. He never complains though – I am in awe of him! I write a blog about us at…[Read more]

  • Lizzy became a registered member 7 months, 1 week ago

    • Lizzy – My name is Michael Morale, and I’m the Forums and Multimedia Director for Cystic Fibrosis News Today. I want to thank you for taking the time out of your day and becoming a member of our Cystic Fibrosis forum. Our job is to make sure that we provide you with the information that you’re looking for, and to try to assist you in any way possi…[Read more]

    • Hi Lizzy! My name is Tré LaRosa and I’m one of the Forum Moderators. Thanks for becoming a member! I’m excited about what this forum could become as a place for quality discussion and a welcoming place for the community. Looking forward to your contributions!

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