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Rusty replied to the topic A little bit of exciting news… in the forum Coronavirus (COVID-19) and CF 6 days, 14 hours ago
Congratulations! I hope the vaccine pipeline starts to open up a little wider soon. Mostly all I hear about are delays and shortages. Also, it is a bit disheartening that some people are declining to get the shot. I just hope it is due to valid reasons rather than misinformation or mistrust.
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Rusty replied to the topic My Personality Is My Worst Symptom in the forum Adults With Cystic Fibrosis 1 week, 1 day ago
Hi All,
More psychology. I will start with this quote that comes from an author named David on the website Raptitude:
“The real pain of many tasks is psychological, arising from the way the mind processes them, not so much from the actions that constitute the tasks themselves. The general rule seems to be this: the more abstract we make an…[Read more] -
Rusty replied to the topic CF and alcohol consumption in the forum Adults With Cystic Fibrosis 3 weeks, 1 day ago
Hi All,
I read somewhere that Alton Brown will add a bit of salt to coffee to reduce bitterness. I tried it and it did seem to make the cup a little “smoother”. I would only do that to bitter coffee which I don’t tend to buy. As for me, coffee never seemed to be a problem. Two cups a day. I believe the diuretic effect is more than offset by…[Read more] -
Rusty replied to the topic 2020 Word Challenge in the forum Adults With Cystic Fibrosis 1 month, 1 week ago
Nonirregardless. Everything that happened this year happened nonirregardless of how we feel about it. Kind of like all of life. That, Jenny, is my perspective.
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Rusty replied to the topic Is Consistency Really The Key? in the forum Adults With Cystic Fibrosis 1 month, 3 weeks ago
“Anything worth doing is worth doing poorly.” Ha! I remember my brother saying this about 30 years ago and it is so true. I think a key to maintaining exercise is to just get started. Trying to hold yourself to a strict routine may actually have the adverse effect of you doing nothing on days you just don’t feel into it. Instead, tell you…[Read more]
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Rusty replied to the topic CFTR modulators and fatty foods in the forum Adults With Cystic Fibrosis 2 months ago
I was not given specifics about just how much fat must be taken with each dose, only to take it with some fat. I just looked up the prescribing information from the Trikafta website and it says, “TRIKAFTA should be taken with fat-containing food. Examples of meals or snacks that contain fat are those prepared with butter or oils or those…[Read more]
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Rusty replied to the topic CFTR modulators and fatty foods in the forum Adults With Cystic Fibrosis 2 months ago
I have not been told to take a specific amount of fat, only that fat must be taken with the modulators. I love fat. I usually use cheese or full-fat Greek yogurt. I am always willing to add liberal amounts of butter or extra virgin olive oil to many things, especially vegetables. I have no limits to the amount of fat I am willing to consume so…[Read more]
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Rusty became a registered member 2 months ago
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Hello, Rusty! Welcome to the forums! I’m Jenny, one of the moderators here along with my friend Bailey. We strive to make the forums a fun, informational, supportive space. If you need help with anything or there is something specific you’d like to chat about, please feel free to reach out to either one of us. We are both happy to help and so glad…[Read more]
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I LOVE this (short and sweet reply but couldn’t resist)