@the-bearshaw-ca
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Canadian cf dad replied to the topic Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut. in the forum Trikafta: Triple Combination CFTR Modulator 1 year, 9 months ago
Thanks you for that Jenny:). Our prime minister, Justin Trudeau, is a poser, more concerned with his appearance and world stage presence and reputation vs taking care of health care in Canada. if international pressure was put on him confronting him with his inaction re trikafta and the cf population in Canada, he would react and he would ta…[Read more]
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Canadian cf dad replied to the topic Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut. in the forum Trikafta: Triple Combination CFTR Modulator 1 year, 9 months ago
Opps.. forum would not accept the facts in Canada. Perhaps you could email me and i could share some information with you? [email protected]
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Canadian cf dad replied to the topic Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut. in the forum Trikafta: Triple Combination CFTR Modulator 1 year, 9 months ago
Trikafta still not approved for use in Canada. Can you believe it?
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Canadian cf dad replied to the topic Drug provision and Trikafta in different countries in the forum Treatment routines, medicines, and the like 1 year, 10 months ago
Thank you for sharing your story and the challenges to get treatment in Russia. You certainly have my sympathy. Sadly Canada is likely not your answer as we are in the same position. Our government effectively witholds treatment for our 6000 cf afflicted children and young adults. Canada delays drug approval for years and years and hides…[Read more]
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This is so fascinating to me because here (the US), I find myself constantly saying, “When can we move to Canada?” My parents have always wanted to. So has my partner. But then I see CF friends online sharing about their own governmental and medical frustrations and you really think: ‘Wow, no place is perfect“… You know? But, in my mind, Canada…[Read more]
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Canadian cf dad became a registered member 1 year, 10 months ago
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Hello and welcome to the forums! My name is Bailey Anne Vincent (I already replied to your comment about drugs in Canada and have a feeling I’m going to learn so much from you!) Often, I have a lovely co-moderator named Jenny, whom you’ll meet in the future (she is currently helping gather stories for our CF Awareness Month initiative in May, but…[Read more]
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Hello! I wanted to jump in and quickly introduce myself! I’m Jenny, 33 with CF and a moderator here. As Bailey mentioned, I’ve been away from the forum working on another project, but will be back in full force very soon. Thanks for joining us here! I look forward to getting to know you more.
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I know my thoughts should be about the horror of this whole situation, and I will have a serious educated answer shortly, but I still have to comment (like a middle schooler) and say I appreciate the use of the word “poser”