Cystic Fibrosis News Today Forums | Canadian cf dad | Activity https://cysticfibrosisnewstoday.com/forums/members/the-bearshaw-ca/activity/ Activity feed for Canadian cf dad. Tue, 07 Apr 2026 20:47:45 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 58e2df14193228d49a23de53e00391cd Canadian cf dad replied to the discussion Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut. in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-expect-more-benefit-than-just-to-mucous-and-sweat-lungs-and-gut/#post-17005 Tue, 08 Jun 2021 21:09:53 -0500 Reply to Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut.

Thanks you for that Jenny:).  Our prime minister, Justin Trudeau, is a poser, more concerned with his appearance and world stage  presence and reputation vs taking care of health care in Canada.  if international pressure was put on him confronting him with his inaction re trikafta and the cf population in Canada, he would react and he would… Read more

]]> 8c46ffa702cc9b3d78932c225c9b74e2 Canadian cf dad replied to the discussion Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut. in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-expect-more-benefit-than-just-to-mucous-and-sweat-lungs-and-gut/#post-17006 Tue, 08 Jun 2021 21:09:28 -0500 Reply to Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut.

Opps.. forum would not accept the facts in Canada.  Perhaps you could email me and i could share some information with you?  the-bear@shaw.ca

]]> 57a72c2b39074ed11b90a4edd07d190d Canadian cf dad replied to the discussion Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut. in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/trikafta-expect-more-benefit-than-just-to-mucous-and-sweat-lungs-and-gut/#post-17003 Tue, 08 Jun 2021 16:42:57 -0500 Reply to Trikafta - Expect more benefit than just to mucous and sweat, lungs and gut.

Trikafta still not approved for use in Canada.  Can you believe it?

]]> 4e27551a06491008af2d2f697fb6b7ac Canadian cf dad replied to the discussion Drug provision and Trikafta in different countries in the forum Regimens, Medicines, and Physiotherapy https://cysticfibrosisnewstoday.com/forums/forums/topic/drug-provision-and-trikafta-in-different-countries/#post-16569 Thu, 29 Apr 2021 18:14:46 -0500 Reply to Drug provision and Trikafta in different countries

Thank you for sharing your story and the challenges to get treatment in Russia. You certainly have my sympathy. Sadly Canada is likely not your answer as we are in the same position. Our government effectively witholds treatment for our 6000 cf afflicted children and young adults. Canada delays drug approval for years and years and… Read more

]]> f9ad785e5b70d48c175c2b7eab605171 Canadian cf dad became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/4709/ Wed, 28 Apr 2021 17:55:50 -0500 2