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Drug provision and Trikafta in different countries
Dear friends!
I am 29 years old and live in Russia. During this time, there were different periods. I was born two months before the collapse of the USSR and adequate treatment became available for CF patients only when I went to school. At that time I began to receive Creon and Pulmozyme, which changed my life significantly.
Then there was a period of increasing of economics in Russia, when medicines and antibiotics, which previously people with CF could only dream of, became available. However nowadays we are thrown far into the past due to the state’s import substitution policy (original antibiotics from “Western unfriendly countries” have been replaced by cheap generic drugs, which not only have many side effects but also worsen the course of the disease).
As you can understand, in these circumstances it’s hard even to dream about Trikafta, since Russian authorities decided that even basic therapy is too expensive.So my first question is how difficult it was for you to get Trikafta?
And I have to confess that I can’t help but think about immigration. I realize that authorities of other countries are not interested in immigrants with such health conditions, but what else can I do if my country is not interested to help to its citizens? I have law education, experience of work and volunteering, but I still have no rights in Russia.
My next question if you know any examples when people could immigrate with cystic fibrosis and with which foundation? As I know, it’s prohibited by US government to immigrate to USA for people with CF, but what about EU countries and UK?
When I talk about immigration I mean that I will study or work, but I’m afraid that my disease will not let me to get a residency.
Anyway, I will appreciate any advice, information and recommendations! Thank you!
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