Tim Blowfield

Thanks Paul. It is that that has no bounds, is experienced but often not understood. That ‘God is love’ is often misrepresented by us by our ignorance as we try to fit Him into our understanding. So often we mould the wonderful and unfathomable into the box of our understanding. Yes. Love is what we can have but often not always understand. …[Read more]

Thanks Paul, you write well and it is encouraging to read. It is wonderful that Tricafta/Kaftrio (TF) has had such a benefit to you. I am still pushing and hoping to get it for Reva.

You still suggest that the effects of TF are the result of the improved mucous but that does not explain all. Many side effects are recorded, many which cannot be…[Read more]

Partial Monocyte Transplant Improves Survival in Mouse Study
By Steve Bryson PhD on Jan 20, 2022 07:00 am

Monocyte immune cells from bone marrow partially transplanted into a mouse model of cystic fibrosis (CF) improved survival and reduced inflammation, a study found. Meanwhile, transplanting monocytes from CF mice into healthy mice triggered…[Read more]

Not a pretty picture here in Victoria, Australia. We broke the record last year as the most locked down city in the world trying to control the beast. The Premier of WA still thinks of himself as King Canute (though he does not admit it) as he tries to keep the Omicron strain out – has the West Australian borders locked tight. Can do so because…[Read more]

Depends what you mean by “love”. The Greeks of old had 4 words that are all translated in english as Love. Eros (self gratifying sexual activity), Erotas ( passionate and romantic often mutual), Philos (as in the love of learning) and   Agape (selfless love benefiting the other even at the lovers expense). We probably have enough of eros but n…[Read more]

Ah. Yes! I am an Australian. We are the only people in the world who can call a dark horse a fair cow and get away with it.  If an Australian calls something a ‘fair cow’ we mean it is horrible, badly behaved, not what it ought to be  or such like. Hence the dark coloured horse that misbehaves is termed a ‘fair cow’.

Ten Ten – not really a ‘fair cow’ – just ‘freezin’ ‘

Unfortunately LFA ignores CF. No reference at all of CF on their website.

Freedom. It is always relative and as Paul said it ‘ends where it limits the freedom of others’. We live in a society and there are limits. In most societies you may not drive a car without a licence. It may be physical limits – you can’t stand on a spot where someone else is standing unless he/she moves. Laws may give rights but usually they…[Read more]

Sad to hear of the uncharitable reaction of that neighbour, Protestant or not. She obviously had little understanding of Jesus’ teaching such as love your neighbour/love your enemies. Admittedly much of what goes on on Halloween is a distortion of All Hallows Eve, a day set aside by many Christians to remember those who have died. It demonstrates…[Read more]

Yes Most laxatives have their problems, even high fibre. My wife finds too much of some fibrous fruits & foods nay block her stoma but fibre is usually the best – needs a constant intake to be best effective and safe. Hyperosmotic agents like PEG (poly ethylene glycol, the basis of movicolon/macrogol)  in low daily doses are very safe and like…[Read more]

That was an excellent answer, Paul.

Re: laxatives: I am very wary but they are used widely in CF. But they often seem to lose effect after a time. Adequate soluble fibre in the diet is important for the bowel to function well. In the push to get as much nutrition into pwCF it is often neglected. Fibre in the diet modulates the faecal consistency…[Read more]

Thanks Jenny and Paul,

Your discussion of what has happened post starting trikafta/kaftrio is very important. May be CF was was protecting you from other respiratory problems. (Sickle Cell Anemia largely protects against malaria. Not sure which is better!) Such protection can lead to selection for a mutation – what may CF do?

You are amazing Bailey. We all fail to various amounts . Recognised by many philosophers and teaches in the past. The writer of the Bible book of Romans notes it in Chapter 3 verse 23 and even Jesus himself replied  “<b>No</b> <b>one</b> is <b>good</b>—except God alone” (Mark 10:8) acknowledging that we all fail.

But the way you pick yoursel…[Read more]

Hi Rasmus, Thanks for sharing this.

Hair loss occurs when the hair follicles stop producing hair cells and keratin. This normally occurs  cyclically but increases with many illnesses (eg severe infections) and treatments (cancer treatments are notorious). Why it may have happened in your case we can only speculate. Was it  the result of Kaftrio (…[Read more]

Nothing about CF surprises me. My wife has had variations in red cell size & shape for as long as I can remember. She also has vasculitis and Sjogren’s syndrome. On ultrasound her blood vessels are ‘small’ and she has had obstructions in the Right Femoral and R Renal Arteries. Blood squeezing through constricted vessels may be expected to cause…[Read more]

My wife was recruited as a ‘patient’ for the annual Physician’s Exams, exams for doctors wishing to progress to specialist physicians. Candidates must get a detailed history from the patient. At one ‘practice exam’ the candidate asked “when did you get CF?”  She immediately knew he knew nothing of CF but that had changed by the end.

Another…[Read more]

Certainly it does happen. We are experiencing a nasty wave of the delta variant but the numbers ill who have been vaccinated are few, very few need hospitalization and none have died. So we can say that both vaccines we have in Australia are working well.

Fall! Here that was 6 months ago or if you are a ‘glass 1/2 full’ person will be in 6 months. Spring is here or almost so. Today a beautiful day – bright & sunny, 21deg – not too hot/ not too cold.

Certainly, Paul, inadequate amino acid intake and deficiency is sadly well known, Marasmus, Kwashiorkor etc are all associated with mental illness and malfunction. Individual amino acid deficiencies do occur such as of Lysine in high grain diets resulting in Niacin deficiency. Anxiety and depression are well known. PWCF should have the services of…[Read more]