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My pet hate is the constant reference to CF as a Chronic Illness. That provides the NDIS in Australia to refuse to fund persons with CF. It also causes people to think of CF as ‘just a lung disease’. CF is realy a DISABILITY – as much as is Downs,Fragile X, Haemophilia and so many more conditions that are accepted by the NDIS and like bodies. CF…[Read more]
Wow! The passage “Here is what my pre-existing condition has made me fight through physically already: The removal of my appendix, gallbladder, large intestine, colon, uterus, and more; hemorrhaging lungs, bleeding colons, and sinus excavations; two G-tube surgeries, two J-tube surgeries, implantable cardioverter-defibrillators, intensive care u…[Read more]
Attitude makes a HUGE difference and what is wonderful is the attitude of so many CF’ers. ‘We shall overcome’ is not just a negro spiritual hymn but is the attitude of CF’ers that helps them achieve huge amounts. I prefer to consider CF itself as not a sickness but it is a disability. The mutations do predispose to sickness but are not themselves…[Read more]
What is normal. In a Physiology practical some 55 years ago my lecturer wrote “Whats normal? I am! but how do you know the frog is?”. We (his students) all wanted to know how he knew he was.
But we do need the concept – often confused and vague – to help us make sense of ‘it all’.
CF is such a chameleon of a disability (I purposely refer to is as…[Read more]
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