Members directory

  • Profile picture of Kevin Schaefer
    Active 17 hours, 50 minutes ago
  • Profile picture of Janice Hankins
    Active 1 day, 7 hours ago
  • Profile picture of Pete Wimmer
    Active 4 weeks ago
  • Profile picture of Jose
    Active 1 month ago
  • Profile picture of Tyler Shupe
    Active 1 month, 2 weeks ago
  • Profile picture of JeanDArc
    Active 1 month, 2 weeks ago
    - "Hi All I just wanted to ask, once you or your child/relative have started taking Orkambi, does the amount of chloride in sweat go down at some point and when approximately? Our 2-yo girl started Orkambi a month […]"View
  • Profile picture of Lizzy
    Active 2 months, 2 weeks ago
  • Profile picture of Dirley
    Active 3 months, 2 weeks ago
  • Profile picture of Canadian cf dad
    Active 3 months, 3 weeks ago
  • Profile picture of Patti Rowland
    Active 3 months, 3 weeks ago
    - "@timothybransford I am actually the mother of a 27 year old CFer. Nothing warms my heart more than having you say “the ramblings of a 65 year old Cfer!” When she was diagnosed at 10 I worried those were words she […]"View
  • Profile picture of Becky Fox
    Active 3 months, 3 weeks ago
    - "Hi Bailey, Kelly’s body image doesn’t really make me reflect affect my own body image at all. All my girls were quite thin growing up, and I fluctuated. I was so thin (and pale) when I was a young adult, that […]"View
  • Profile picture of Ronald Cubalchini
    Active 3 months, 4 weeks ago
  • Profile picture of Lorraine
    Active 3 months, 4 weeks ago
  • Profile picture of Carol Losier
    Active 3 months, 4 weeks ago
  • Profile picture of David Wagner
    Active 4 months ago
    - "Hi everyone . I am searching for volunteers from any state though out america. We are working on a fed law called David s law for students with cystic fibrosis . We need volunteers to write to law makers and tell […]"View
  • Profile picture of Evona
    Active 7 months ago
  • Profile picture of Nelson Narciso
    Active 8 months, 1 week ago
  • Profile picture of Brian
    Active 8 months, 2 weeks ago
  • Profile picture of Clarissa Phillips
    Active 9 months ago
  • Profile picture of Gary Levin
    Active 10 months, 3 weeks ago
    - "The new combination drugs have increased my son’s PFT to almost 90% and he no longer coughs at night or upon awakening. He senses he can breathe much better. However taking the recommended doses results in some […]"View
  • Profile picture of Sarah H
    Active 11 months, 1 week ago
  • Profile picture of yondaimesama871
    Active 11 months, 3 weeks ago
  • Profile picture of Nikita Greene
    Active 1 year ago
  • Profile picture of April Biggs
    Active 1 year, 1 month ago

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