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Click here to read about how researchers at Yale University are trying to solve the shortage of transplantable lung material by growing them in a lab.

What do you think of this story? How do you feel about lab-grown organs?

Click here to read Ella Balasa’s reflections on physical fitness and transplant candidacy.

Can you relate? Do you also wonder when you will be ‘sick enough’ for a transplant?

The Scottish Medicines Consortium (SMC) has refused to recomend the routine use of Orkambi and Symkevi to the National Health Service (NHS) Scotland. Find out why here.

What do you think of this news? Do you agree with this recommendation?

High blood levels of ALT, a biomarker of liver damage, may be easy way of judging risk of CF-related diabetes, especially in male patients, a study reports. Click here to read more.

What are your thoughts about this news?

Elizabeth Rogers loves video games and says that though it’s a form of escapism, she can’t imagine her character without cystic fibrosis. Click here read more from Elizabeth.

Do you play video games? Do you tend to see your character as an extension of yourself or as someone completey different?

Click here to read about a real-world study on quality of life, cystic fibrosis symptoms, and school productivity as reported by patients on Kalydeco and those on standard treatment.

Did this study’s findings surprise you?

Click here to read about Neena Nizar, founder of the Jansen’s Foundation and one of only 25 or so confirmed Jansen’s patients worldwide.

Had you heard of this disease before?

Again! We got another awesome question from @jenny-livingston that is geared towards the guys in the CF community. We both agree, that within our groups for women with CF, dating is such a huge topic for us. Does having CF make dating more difficult — are there any ideas of masculinity that you feel you have to overcome with CF? Do you hesitate…[Read more]

Hi all! A friend, @jenny-livingstonrecently posted several questions about body image (a topic we’re so used to associating with women). But, this time, she wanted to know how body image affects men with CF. More specifically, what’re the ways CF has affected YOUR body image?

So:

1. How has body image affected YOU?
2. Has CF influenced your…[Read more]

Click here to read Tré LaRosa’s column about how climate change will affect those with chronic lung diseases, including cystic fibrosis.

What are your thoughts on this issue?

We all have ways of escaping from the harsh realities that surface with CF. Heck, I’d even say the everyday, mundane realities that are a part of CF need a form of escapism. I think for me, what helps me is writing and connecting with myself — whether that’s through spending time on the trails, or meditating, or working out. I think making an ef…[Read more]

Columnist Bailey Anne Vincent addresses bullying in the chronic illness community and the importance of respecting people’s journeys. Read more from Bailey here.

Have you ever been bullied inside your “own” community? What was that like? How did you respond to the bullying?

Every week, we feature a Man Crush Monday on our CF News Today Instagram channel. This week we had Sean, and here is what he had to say:

Hey y’all! We’re back from our MCM break and so stoked to have Sean! @sean_wiere is 24 years old and is from Oahu, Hawaii! Here are three things that are important to HIS story with CF. Be sure to answer his…[Read more]