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The Cystic Fibrosis Foundation has awarded up to $5 million to Armata Pharmaceuticals to advance the development AP-PA02 to a Phase 1b/2 clinical trial. Read more about it here.

What are your thoughts about this news?

Despite constraints due to the coronavirus pandemic, the Paris-based IRDiRC continues efforts for 1,000 new therapies and better rare disease care by 2027. Read more about it here.

What are your thoughts about this news?

A study found long-term health benefits for azithromycin in slowing the decline of lung function in CF patients infected with Pseudomonas aeruginosa. Read more about it here.

What do you think about this study and its findings?

Columnist Wendy Caroline shares her unique perspective on the risks of COVID-19 as a person living with CF and a businesswoman. Read more from Wendy here.

Can you relate to what Wendy shares?

A donation-based emergency fund has been launched to help CF families pay for food and medication while they are not working due to the COVID-19 crisis. Read more about it here.

How have the COVID-19 affected you? Is it taking a toll on your financial wealth already?

I am already trying to think about topics for my column next week, and I keep coming back to the notion of a Quarantine Routine and how much I need one for myself. I’ve seen others posting about what they’re doing while social distancing or stuck at home, whether that be daily workouts, or cooking, or crafting projects… And I was wondering:…[Read more]

While examining his own mental health struggles, columnist Tré LaRosa breaks down barriers to open discourse about depression and anxiety. Click here to read more from Tré.

How often do you talk about your mental health? Who do you feel most comfortable opening up to?

AB569, Arch Biopartners’ candidate for bacterial infections in CF and other respiratory diseases, killed bacteria in cell assays and in mice, a study found. Read more about it here.

What do you think about this study and its findings?

I wrote a column this week called “I Don’t Fit the Description of What CF Is Supposed to Be” and I’m wondering: How many of you have some other illness that doesn’t commonly connect to CF?

I have friends who have CF and fibromyalgia. Or CF and something else. Does anyone else have “CF And”?

I personally consider all of my complications…[Read more]

Here in the United States, we’re seeing massive school closures across the country due to COVID-19. Colleges and universities have moved to online instruction, and most K-12 schools have been closed for the time being.

My daughter’s school, for now, is doing distance learning. Her teacher records “welcome” videos each morning and talks…[Read more]

Liver ultrasound can help identify children with cystic fibrosis who are at higher risk of developing liver disease, a new study shows. Click here to read more.

What do you think about this study and its findings?

I have read the advice about cancelling all non-urgent medical appointments amid the COVID-19 outbreak but I can’t help but wonder: What does compliance mean during the coronavirus?

I have an important appointment tomorrow that is not medically urgent (I’m not in pain at this moment) but it IS in the sense that it’s dealing with something…[Read more]

The passage of time can result in changes both good and bad. Columnist Ella Balasa reflects on health improvements and the inevitability of the unknown. Read here.

How do you deal with changes?