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Growing up, Tré LaRosa dreamed about becoming a doctor like the amazing medical professionals who kept him, a young person with cystic fibrosis, alive and inspired him to want to help others. Over time, however, Tré found himself butting up against several harsh realities, and his plans changed.

Click here to find out what happened.

What d…[Read more]

I’ve noticed I’m both sympathetic and cautious to others coughing in public. I get very uneasy if somebody is hacking up to the point where it sounds like it could be the flu or something contagious, but with that being said, I’ve been at the other end of people looking at you weirdly and that doesn’t feel good.

1. How do you respond to others…[Read more]

With CF, coughing becomes second nature. Almost to the point where we don’t even notice it. This means we can get looks from people when we cough loudly.

1. How common is it that people give you funny looks whenever you cough in public? How does it make you feel and how do you typically respond?
2. Do people ever make comments? Do you ever respond?

I don’t think we do this enough — or ever. But, I think it’s super important to pause and honor what you are good at, what makes you who you are, and makes you smile. You guys are welcome to chime in, but here’s a bit of me recognizing what I’m good at

I honestly think my biggest strengths come from communication, and ironically some of the…[Read more]

So, our team member and columnist Elly recently wrote this piece. discussing feelings of self worth and attaching them to work and productivity. And what that can look like with CF.

I hella resonated with this piece. I can remember when I was in sixth grade being so afraid of going back to school after being sick for a week, because I was so…[Read more]

The Great Strides walk event is CFF’s largest national fundraiser that seeks to raise awareness about cystic fibrosis (CF), and shed light on the difficulties that CF patients face. Participants can form a family team, a national corporate team, or a civic group team. Emily’s Hope (a family team) and Cisco (a corporate team) have partnered to rai…[Read more]