Activity

Hannah Buck wants you to be good to yourself! To that end, click here to read about her “kind” health resolutions for 2018.

Do you find it easy or difficult to practice kindness toward yourself? What can you celebrate about yourself today?

Click here to read Reid D’Amico thoughts on the struggle dto let love ones support him as he lives with the unpredictability of cystic fibrosis.

Do you struggle to let others help you or do you accept help easily?

Click here to read a poem by Hannah Buck, written two years ago in the midst of post-diagnosis anxiety and depression and titled “I’m Not Crazy”.

What do you think of Hannah’s poem? Do you use writing to express yourself?

Hannah Buck has experienced ups and downs in her professional life; now she’s fulfilling a dream of writing for a living. Click here to read more from Hannah.

How has having CF impacted your ability to work and career goals?

Periods of good health are great, but don’t get too comfortable, Hannah Buck warns; they can also lead to prolonged sickness if people with CF aren’t mindful about taking care of themselves. Click here to read more from Hannah.

Do you ever feel like you can’t truly relax about taking care of your health? Is that stressful or frustrating for you?

For full feature, click here!

We’re excited to share Trina’s story with CF. @trina_laine is 32 years old and is from Vancouver. Here are the things she finds most important to her story! ⁣⠀
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✨I was diagnosed with CF at 6 months old in 1987. My life expectancy was 12 and I spent many of my young years in the hospital going through treatments…[Read more]

CF has made me confront my own mortality. CF has made me confront mortality of those I love.
CF has shown me depths of my insecurities and the ruthlessness of other people’s cruelty.
My body has given me reason to hate it. With each ounce of blood that seeps from my lungs and into a porcelain white sink.

My body has given me reason to not t…[Read more]

Click here to read Hannah Buck’s thoughts on what cystic fibrosis has forced her to miss out on in life, and how the struggle has driven her to live quickly and mak the most of her time.

Do you ever feel deprived or like you’re missing out on things because of CF?

I remember being really upset when I learned that most men with CF are infertile. Men, do you remember the day you found out? How did you feel? Have you thought any more about having kids since then? Do you plan on having kids?

One of the worst days of my life was discovering that CF was a life-shortening disease. I remember being heartbroken for weeks over it.

Do you remember that day? How did you discover it? How did you feel afterward?

This is a safe place to talk about an obviously devastating day.

Hi there.

I’m Rasmus, 30 years old and born and raised in Denmark.
I have a sister with CF – 34 years old an two kids.
I have another siter without CF 45 years old
I never met my last sister, Linette, which died of CF in age of 7 – in the 80’ies.

My recent “project” was microdosing magic mushrooms. I dont think the doctors condone that 😉
And……[Read more]

Hannah Buck has been battling terrible headaches since she was 10 and doctors can’t figure out why. Consequently, Hannah has learned to accept what cannot be changed, at least for now. Click here to read more from Hannah.

What are some examples of things in your own life that you’ve had to accept you can’t change?

Hey guys, this week’s MCM is Adam! @adermbrosto is 30 years old and is from Wisconsin. Here are 3 things he wants you to know about his life with CF:⁣⠀
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🎼I received a double lung transplant in November 2018 and since have enjoyed the little things in life that I honestly had forgotten existed or took advantage of when I was in good health. I…[Read more]