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typo correction: where I wrote

“It is always wise to prevent obstruction in the bowel or hard stools. So, increasing the amount of Solmucol is not wise as a precaution”.

I meant to say:

“It is always wise to prevent obstruction in the bowel or hard stools. So, increasing the amount of Solmucol is wise as a precaution”.

Hello Jean,

Thanks for your good question.

It is not entirely clear to me what you mean when saying that the doctor has increased the doses of Creon. Does your daughter take more pills with the same meal (relative increase in Creon), or does she take more pills because she eats bigger meals now, or because she eats more often (absolute increase…[Read more]

From fda.gov:

“The Moderna COVID-19 single booster dose is half of the dose that is administered for a primary series dose and is administered at least six months after completion of a primary series of the vaccine”.

So, side effects may be milder than the original vaccine you had.

We will get our flu shot next week. Mostly we have no…[Read more]

Good subject!
Completely agree with you about not holding back and sharing love as much as possible, Jenny.

I can’t share your interest for funerals however. Perhaps I didn’t go to the good ones yet 😉 If there is life music, it becomes more bearable and less formal. The best memory I have is my mother’s funeral, because I got to talk in the…[Read more]

Yes, those lithium ion batteries for the Pari trek S only last for so long. Fortunately, this one is replaceable and not that expensive.
I use the Pari e-flow mesh nebulizer, it’s compact (fits in my pocket like a disc-man), ultra light weight and uses AA batteries (I use it with rechargeable batteries) or an adapter, which is cheap. It’s my only…[Read more]

I just registered to get my booster next week. I also had Moderna and my first dose went really well, but that second dose was a doozy! I had aches, fever, some nausea, and fatigue for a couple days. I am hoping that the booster will be a little easier, but am fully prepared for a rough time if that happens to be the case.

With this year’s flu…[Read more]

Hi Bailey,

I had both in the same day (different arms) over a week ago  The booster and regular flu shot did cause me to have sore arms for the next couple of days, but I think having covid and/or the flu would be much worse.  It reminded me of past booster shots I had.  The pain was not unbearable.

Jude

I felt panic creeping in while reading this, Bailey! I’ve developed a specific type of anxiety that happens anytime I see someone struggling for breath, whether it be in real life or on a screen. Most recently, it happened while watching a fellow CF friend talk in their Instagram stories. That’s all – they were just speaking. But I could hear…[Read more]

Hello Bailey, good to see you’re back again. My fun thing is that I fell in love. It’s in the sundaymorning talk.

🙂 Thanks, I did! Today I offered her some grass and she ate it right out of my hand. We are on eating terms now.

Oops, this addendum belongs to Williams question about switching doctors. I put it there as well now, to be sure. Sorry.

… and very important: if and when letting go announces itself, make sure it comes from acceptance and not from resistance. Check your mindset carefully. If you first fully came to terms with it and are in peace, then the chances of finding a benevolent continuation are far more conducive. Your next doctor is already there, finding is much more easy then.