Cystic Fibrosis News Today Forums | Daryn Body | Activity https://cysticfibrosisnewstoday.com/forums/members/darvicbody75/activity/ Activity feed for Daryn Body. Sat, 18 Apr 2026 22:55:32 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 118847be99974715e7152bc8cae1a7fa Daryn Body replied to the discussion Experiences with Alyftrek in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/experiences-with-alyftrek/#post-20020 Thu, 04 Dec 2025 13:29:52 -0600 Reply to Experiences with Alyftrek

So, I was on it for many months but it severely increased sinus pressure; but no significant change to base line symptoms and functions. I actually switched back to Trikafta and the sinus pressure disappeared. I was so hopeful that Alyftrek make more improvements over Trikafta but I do great on Trikafta! Haven’t had a hospitalization is over 5…

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]]> a334a488c2818b5efa066559de7c7698 Daryn Body replied to the discussion Vent session: my frustrations with lung pain in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/vent-session-my-frustrations-with-lung-pain/#post-19460 Fri, 26 Jan 2024 11:59:00 -0600 Reply to Vent session: my frustrations with lung pain

Hey all! It’s been a minute since I was on here. Trikafta has changed everything! I find that my body reacts so differently than before. All mostly for the good!

It was my understanding that the lungs can’t actually feel pain; but the surrounding musculature and tissue can as a result of inflammation or tightness; etc. I have always had…

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]]> e249fa2348cb4fb4ba3b4dc4df039729 Daryn Body replied to the discussion Navigating a post-Trikafta world in the forum CFTR Modulators https://cysticfibrosisnewstoday.com/forums/forums/topic/navigating-a-post-trikafta-world/#post-18626 Tue, 23 Aug 2022 20:45:13 -0500 Reply to Navigating a post-Trikafta world

Great topic Jenny! So true!
It’s hard to know what to expect from my body in the Trikafta realm; greater stamina; increased workout tolerance; seeing faster results from workouts; harder to lose weight (putting weight on… what??), simpler therapy (even postponing/skipping sometimes [not recommended]); etc.

Sometime ago I had set a 10 year… Read more

]]> e27fed2242d721192e4162865e32d2ea Daryn Body replied to the discussion Comforting Home Remedies in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/comforting-home-remedies/#post-17850 Fri, 07 Jan 2022 01:30:28 -0600 Reply to Comforting Home Remedies

Hot/cold showers are a great remedy for me! Helps the body aches, congestion (cause of rapid breathing during the cold cycle) and generally resets the body. I have several herbal remedies I use as well. Of course, more rest! Thanks for sharing your experiences. Trikafta has changed the face of CF forever…

]]> a66dd9e17177d94bd9e3fbd406689bd5 Daryn Body replied to the discussion Massages and Muscle Guns: Yay or Nay? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/massages-and-muscle-guns-yay-or-nay/#post-15862 Wed, 11 Nov 2020 23:43:31 -0600 Reply to Massages and Muscle Guns: Yay or Nay?

Absolutely Yay! I have been getting massage for years.
I have found that easing the tension and muscle tightness around the chest cavity makes therapy easier and loosens secretions. I am especially partial to traditional Thai massage; after experiencing my first one in Thailand in 2015. We had a very nice, traditionally run, local place that… Read more

]]> 6da8ab09800a7d9f9334f0ce77173d34 Daryn Body posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/3863/#acomment-3873 Wed, 11 Nov 2020 22:26:36 -0600 Bailey, I have been reading the posts for awhile. I signed up to comment on your recent post about massage and massage guns. I especially enjoy the posts about real life living while coping with CF. Keep up the good work!

    In reply to - Daryn Body became a registered member ]]>         0d6849f66e408409a2d37bb4300b3f68 Daryn Body posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/3863/#acomment-3872 Wed, 11 Nov 2020 22:24:51 -0600 Jenny, thank you for your work on the forum. I have been reading for awhile now and thought I would offer comments once in awhile. Keep up the good work! Sorry to hear about your sibling; how old were they?

      In reply to - Daryn Body became a registered member ]]>             05ad9adf61adbf573535b2b36313b362 Daryn Body became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/3863/ Wed, 11 Nov 2020 15:45:03 -0600 5