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Laura Lee Joiner posted a new activity comment 7 months, 2 weeks ago
Thank you
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Laura Lee Joiner posted a new activity comment 8 months ago
Thank you!
I go by Laura Lee
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Laura Lee Joiner replied to the topic Dealing with Feelings of Survivor's Guilt? in the forum Adults With Cystic Fibrosis 8 months ago
I have a deep sense of survivor’s guilt just because I am now 48, just getting diagnosed, and as a person with CF who was born in the 1970s only have a life expectance of age 14. I feel guilty because not only should I not be alive, I have even been sick enough to be diagnosed until now. I know it’s silly and I am grateful for the life I have h…[Read more]
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Laura Lee Joiner replied to the topic Dealing with Feelings of Survivor's Guilt? in the forum Adults With Cystic Fibrosis 8 months ago
I hII
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Jeanne and
Laura Lee Joiner are now friends 8 months ago
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Laura Lee Joiner replied to the topic Late CF Diagnosis in the forum Adults With Cystic Fibrosis 8 months ago
I’m in the US and truly just consented to everything CFF registry, Trikafta etc at my clinic visit last Wednesday. So far, my insurance has covered everything and open enrollment is coming soon so planning to bump up my coverage.
I’m optimistic that the Trikafta will be covered but shudder to think about what the copay might look like.
My hus…[Read more]
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Laura Lee Joiner replied to the topic Late CF Diagnosis in the forum Adults With Cystic Fibrosis 8 months ago
My story is pretty similar to some above. I was just officially diagnosed about a month ago at the age of 48. I had COVID in early January and while I never got particularly sick, I had lingering respiratory issues … horrendous cough with shortness of breath as well as laryngitis.
I work in healthcare and after about three weeks of this g…[Read more]
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Laura Lee Joiner became a registered member 8 months ago
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Laura (do you go by Laura or Laura Lee?), hello and welcome to the forum! I’m Jenny, one of the moderators here. I’m so glad that you’ve joined us and I look forward to getting to know you/ Please let me know if I can help you in any way while you’re here.
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Thank you!
I go by Laura Lee
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Hi Laura Lee — welcome to the forums! I am happy to have you here. I am a co-moderator and I also have CF. I look forward to getting to know you!
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Thank you
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