Cystic Fibrosis News Today Forums | Laura Lee Joiner | Activity https://cysticfibrosisnewstoday.com/forums/members/doclolly/activity/ Activity feed for Laura Lee Joiner. Tue, 14 Apr 2026 13:16:00 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4b75b56ab37c6170407030c253c1751f Laura Lee Joiner posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/6669/#acomment-6712 Sat, 22 Oct 2022 01:51:35 -0500 Thank you

In reply to - Laura Lee Joiner became a registered member ]]> c1fde048a60e98ec56f8952b0a93bacb Laura Lee Joiner posted a new activity comment https://cysticfibrosisnewstoday.com/forums/activity/p/6669/#acomment-6696 Mon, 10 Oct 2022 22:46:54 -0500 Thank you!

I go by Laura Lee

In reply to - Laura Lee Joiner became a registered member ]]> 315c81c717a4e3270ae7f86f9538b78c Laura Lee Joiner replied to the discussion Dealing with Feelings of Survivor's Guilt? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/dealing-with-feelings-of-survivors-guilt/#post-18765 Mon, 10 Oct 2022 01:10:58 -0500 Reply to Dealing with Feelings of Survivor's Guilt?

I have a deep sense of survivor’s guilt just because I am now 48, just getting diagnosed, and as a person with CF who was born in the 1970s only have a life expectance of age 14.  I feel guilty because not only should I not be alive, I have even been sick enough to be diagnosed until now.  I know it’s silly and I am grateful for the life I have… Read more

]]> da38b340026cbe9233807e03c7ac88de Laura Lee Joiner replied to the discussion Dealing with Feelings of Survivor's Guilt? in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/dealing-with-feelings-of-survivors-guilt/#post-18764 Mon, 10 Oct 2022 01:07:39 -0500 Reply to Dealing with Feelings of Survivor's Guilt?

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]]> 08759da2a9452cc4196616c946c0d916 Laura Lee Joiner replied to the discussion Late CF Diagnosis in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/late-cf-diagnosis/#post-18759 Sun, 09 Oct 2022 12:40:05 -0500 Reply to Late CF Diagnosis

I’m in the US and truly just consented to everything CFF registry, Trikafta etc at my clinic visit last Wednesday. So far, my insurance has covered everything and open enrollment is coming soon so planning to bump up my coverage.

I’m optimistic that the Trikafta will be covered but shudder to think about what the copay might look like.

My… Read more

]]> c19ae43301fc1fc6f16afe508db6f690 Laura Lee Joiner replied to the discussion Late CF Diagnosis in the forum Adults​ ​With​ ​CF https://cysticfibrosisnewstoday.com/forums/forums/topic/late-cf-diagnosis/#post-18755 Sat, 08 Oct 2022 20:52:39 -0500 Reply to Late CF Diagnosis

My story is pretty similar to some above. I was just officially diagnosed about a month ago at the age of 48. I had COVID in early January and while I never got particularly sick, I had lingering respiratory issues … horrendous cough with shortness of breath as well as laryngitis.

I work in healthcare and after about three weeks of this… Read more

]]> 6517580751a592b67c3d6ae494835787 Laura Lee Joiner became a registered member https://cysticfibrosisnewstoday.com/forums/activity/p/6669/ Fri, 07 Oct 2022 14:47:00 -0500 4