@dootz
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Kathy Gunter replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 3 months, 3 weeks ago
Thank you for your well-wishes. I’m sorry. I reread my post and I wasn’t clear. I am not eligible for the modulators due to my mutations, not my age. Sorry for the poorly worded sentence/confusion.
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Kathy Gunter replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 3 months, 3 weeks ago
Exhaustion from the build up of inflammation and infection? Honestly, I really feel like I should go in more often than I do. I have been averaging once or twice a year now for the last 3 years. Although by sheer Grace I have been mostly stable over that time period, because of covid numbers taking up hospital rooms for so long (and my team di…[Read more]
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Kathy Gunter became a registered member 6 months, 1 week ago
Kathy, hello and welcome to the forum! I’m Jenny, one of the forum moderators, and I am so glad that you’ve joined us here. Please let me know if there is anything I can help you with as you become more familiar with the forum. I’m happy to help and look forward to getting to know you.