Short Bio |
Caregiving momma of two, since 2008 when our daughter was born with a bowel blockage in her small intestine that required surgery at 4 days old, 5 weeks old, and 3 months old. It was traumatic and the thought of my daughter having CF was very terrifying and I had no clue what it even was. The outlook given to us was grim, but we refused to lose hope. She was our gift from heaven and what we had hoped and prayed for. So we took each day one at a time and with the support of Arkansas Children’s Hospital and the guidance of our Lord and savior, she is now a healthy teenager. Trikafta has allowed us all to breathe a little easier. However, Mariah still struggles with IBS-Constipation so I continue researching on nutrition and supplements because I believe food is our medicine and another tool in our arsenal against cystic fibrosis. One day CF will stand for Conquered Forever! Until then, we battle on!
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How long have you or the person that you are caring for had CF? |
14
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