@irene
-
Irene replied to the topic Drug provision and Trikafta in different countries in the forum Treatment routines, medicines, and the like 1 year, 11 months ago
Thank you for reply, Tim. I have one 508 mutation and Trikafta suites me, but I can only dream about it to date.
-
Irene started the topic Drug provision and Trikafta in different countries in the forum Treatment routines, medicines, and the like 1 year, 11 months ago
Dear friends!
I am 29 years old and live in Russia. During this time, there were different periods. I was born two months before the collapse of the USSR and adequate treatment became available for CF patients only when I went to school. At that time I began to receive Creon and Pulmozyme, which changed my life significantly.
Then there was a…[Read more] -
Irene became a registered member 1 year, 11 months ago
Hello, Irene! Welcome to the forum! I’m Jenny, one of the moderators here. If you ever need help navigating the forum, or there’s every something specific you’d like to talk about, please don’t hesitate to reach out. Along with my friend and co-moderator, Bailey (whom you’ll be meeting soon), I’m thrilled that you’re here and happy to help. I look…[Read more]