Luisa Palazola

Again! We got another awesome question from @jenny-livingston that is geared towards the guys in the CF community. We both agree, that within our groups for women with CF, dating is such a huge topic for us. Does having CF make dating more difficult — are there any ideas of masculinity that you feel you have to overcome with CF? Do you hesitate…[Read more]

Hi all! A friend, @jenny-livingstonrecently posted several questions about body image (a topic we’re so used to associating with women). But, this time, she wanted to know how body image affects men with CF. More specifically, what’re the ways CF has affected YOUR body image?

So:

1. How has body image affected YOU?
2. Has CF influenced your…[Read more]

We all have ways of escaping from the harsh realities that surface with CF. Heck, I’d even say the everyday, mundane realities that are a part of CF need a form of escapism. I think for me, what helps me is writing and connecting with myself — whether that’s through spending time on the trails, or meditating, or working out. I think making an ef…[Read more]

Every week, we feature a Man Crush Monday on our CF News Today Instagram channel. This week we had Sean, and here is what he had to say:

Hey y’all! We’re back from our MCM break and so stoked to have Sean! @sean_wiere is 24 years old and is from Oahu, Hawaii! Here are three things that are important to HIS story with CF. Be sure to answer his…[Read more]

I came across this <a href="http://“>video again today, and every time I see it — I always find myself in awe. Thought I’d share.

I recently stumbled upon a Facebook post about vaping weed, and the comments got a little interesting. There was a user who actively and regularly smokes. Which, as a person with CF — it’s daring to say the least, but I think it’s interesting to unfold why. From what I read, this user had/has severe issues with depression and has had suicidal…[Read more]

We all need to sterilize our nebs, and sometime it’s difficult deciphering what’s the best way or machine to help. Here are a few suggestions:

1. Wabi Baby Electric Steam Sterilizer and Dryer — many people report that this product is gentle and does not warp neb cups, Pari LC’s, and even acapella’s.
2.  Brezza bottle sterilizer
3. Old…

[Read more]

I know a lot of people with CF have had issues with short term memory retention. I know my memory can’t always be reliable, and I’ve been trying to pin down what is up. I’ve read through several FB posts that some of the CFTR modulators (Orkambi, Symdeko, and triple combo) could affect memory and cause memory fog. Of course, post transplant…[Read more]