Luisa Palazola

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We’re excited to share Trina’s story with CF. @trina_laine is 32 years old and is from Vancouver. Here are the things she finds most important to her story! ⁣⠀
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✨I was diagnosed with CF at 6 months old in 1987. My life expectancy was 12 and I spent many of my young years in the hospital going through treatments…[Read more]

CF has made me confront my own mortality. CF has made me confront mortality of those I love.
CF has shown me depths of my insecurities and the ruthlessness of other people’s cruelty.
My body has given me reason to hate it. With each ounce of blood that seeps from my lungs and into a porcelain white sink.

My body has given me reason to not t…[Read more]

Hey guys, this week’s MCM is Adam! @adermbrosto is 30 years old and is from Wisconsin. Here are 3 things he wants you to know about his life with CF:⁣⠀
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🎼I received a double lung transplant in November 2018 and since have enjoyed the little things in life that I honestly had forgotten existed or took advantage of when I was in good health. I…[Read more]

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Hey guys! We’re so stoked to introduce Olivia as our WCW this week! @livalittletoday is 26 and lives in Kansas City, MO. These are three things important to HER story with CF. Be sure to answer her Q in the comments!⁣⠀
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💃My story began at 9 weeks old, when I was diagnosed with CF. Since that day I’ve learned to…[Read more]

I think we all idealize the day the that CF stands for Cure Found. And, don’t get me wrong — I can’t wait for that moment. But, from my experiences on the most promising CFTR modulator, it’s a big change in a short bit of time.

When we say cure found, especially for older patients. What does that mean? Do all of our symptoms cease over night?…[Read more]