@luisa-palazola
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Luisa Palazola replied to the topic Help: I Am an Anti-Germaphobe Who's Becoming a Germaphobe in the forum Adults With Cystic Fibrosis 1 month, 3 weeks ago
For me, I find myself to becoming a lax but aware germaphobe… I think of airports and hospitals most often. I usually try to avoid hand contact with anything. Purell everything. Wipe an area with clorox wipes. But, in more daily and mundane experiences — I am a lot more lax, and almost find it to be liberating and an act of defiance to hold a…[Read more]
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Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Julie! Love having ya here — I am Luisa, and I am 26 and I also have CF. I moderate the forums and work with our social media. Would love to hear a bit of your story, and should ya need anything from me, feel free to reach out! If you like social media, our IG page is pretty awesome, too! @cfnewstodayLuisa!
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Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Kristy! Love having ya here — I am Luisa, and I am 26 and I have CF. I also moderate the forums and work with our social media. Would love to hear a bit of your story, and should ya need anything from me, feel free to reach out!
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Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Natalie! Love having ya here — I am Luisa, and I am 26 and I have CF. I also moderate the forums and work with our social media. Would love to hear a bit of your story, and should ya need anything from me, feel free to reach out! -
Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Rich! I am Luisa and I am 26 and I have CF! I am a moderator here, and I also manage our social media 🙂 I love seeing parents engage, and if ya need anything from, feel free to reach out. My co-moderator @jennifer-livingston is also awesome and easy to talk to, too!Luisa
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Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Rae, how are ya! I am Luisa and wanted to introduce myself: I have CF and am 26, I also coordinate a lot of our social media, and moderate the forums a bit! I see you are family to someone with CF, do you mind me asking who! Let me know if ya need anything, I am here to help. @jennifer-livingston is also one of our moderators, and is… -
Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Clarence! Thanks for joining our forums family! I am Luisa and I am 26 and I have CF. I also moderate here a little bit, but mostly work with all our social media. How are you doing, though? Let me know if ya have any questions or anyway we can help. @jennifer-livingston is also a moderator here, and is AWESOME!Luisa
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Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Melanie! Welcome to our forums family 🙂 I am Luisa and I also have CF (I’m 26!). I also manage our social media and love to collab ideas with our community. Let me know if you have any questions or topics of discussion you want to put out there. Would love to know if you’re eligible for Trikafta!Luisa
IG: @cfnewstoday -
Luisa Palazola posted a new activity comment 4 months, 1 week ago
Hey Tabitha — how are you! I am Luisa and I also have CF and am one of the moderators here 🙂 Let me know if ya need anything or have any questions! We also have a really active IG page if ya want to follow @cfnewstoday 🙂 -
Luisa Palazola posted a new activity comment 4 months, 3 weeks ago
AIMEEE! We meet again — haha! This is actually one of my jobs, to forum moderate here and to Community Manage for CF News Today altogether. I’m glad you joined our forums! <3 <3-
HIIIIII!! Awesome! I love that we keep running into one another lately! <3 <3
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Luisa Palazola posted a new activity comment 4 months, 3 weeks ago
Hi! I am Luisa and I am one of the Forum Moderators for CF News. I actually have CF 🙂 I see you work in the medical field, I am guessing with CF! I hope you’re well -
Luisa Palazola started the topic A multitude of thoughts on Trikafta's Approval in the forum Adults With Cystic Fibrosis 5 months, 1 week ago
Yesterday I got a screenshot of the FDA’s approval for what is now Trikafta: I’ve been on the study for the last 10 months — and hearing an actual name (aside from triple combo) is bonkers to me. What’s even more bonkers is how I feel: how my numbers have changed, and the ability to wake up and breathe without a slew of mucus const…[Read more]
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Luisa Palazola replied to the topic Triple Combo — three week update from Ella Balasa in the forum Trikafta: Triple Combination CFTR Modulator 5 months, 1 week ago
Love it! Triple combo is … 😉
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Luisa Palazola posted a new activity comment 5 months, 4 weeks ago
May you remind me of the name of your books, and I’ll be sure to look them up. And, jeez — post WWII was such an apocalyptic space for the world, toppled with the news of CF… I can imagine you took on that identity to not want to have CF.-
The three books published since my transplant are :Bain’s New York. The City in News Pictures, 1900-1925; Sunny Land. Pictures from Paradise; and Some of Us. (The last two are collections of my photographs. You can see some of my pictures on my website: michaelcarlebach.com
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Luisa Palazola replied to the topic What're your CF Tattoos? in the forum Adults With Cystic Fibrosis 5 months, 4 weeks ago
Hi @rhealawton I am so sorry to hear about your husband, but what an incredible life — 51 years old. Thank you for sharing, but actually the photo is not appearing! You’re more than welcome to try reposting in a different format, or should you want to add my on social media (facebook or IG) and send me a photo through there, I would love to post for ya!
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Luisa Palazola started the topic Cystic Fibrosis Summit by Proteostasis Therapeutics in the forum CF Science and Research 5 months, 4 weeks ago
Proteostasis Therapeutics or PTI Biotech is a innovative biopharmaceutical company that is helping develop novel CFTR therapies, and more innovative methods of treating CF. Their big theme is approaching CF care from all angles of a patient’s care and also from different parts of the world. I was asked to speak a little on my story with CF and…[Read more]
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Luisa Palazola started the topic Childhood memories in the forum Adults With Cystic Fibrosis 6 months ago
Last night I was sharing my thoughts on Instagram stories, as I often do. I began reminiscing about childhood and all the things I used to innocently think. It started a dialogue with my CF friends, and we began sharing things related to how we saw CF when we were little, here are two of my absurd childhood thoughts:
1. I was diagnosed late with…[Read more]
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Luisa Palazola posted a new activity comment 6 months ago
Hi Kristy! I hope you are well 🙂 I wanted to take a moment to introduce myself, I am Luisa and I am 26 years old — and I also have CF! I also am one of the forum moderators here, along with @jennifer-livingston ! If you need anything, don’t hesitate to reach out 🙂 -
Luisa Palazola posted a new activity comment 6 months ago
I’m well! Head ache-y today, haha! But, on this particular forum, I don’t think so — but, we are so welcoming of others! However, I also manage our social media, and through Instagram, I’ve met various people from Australia with CF. And, yes — if you sift through the different forum topics, you’ll see we’ve got all sorts of discussions on… -
Luisa Palazola posted a new activity comment 6 months ago
Oh my gosh, that’s so cool. Are your books available to order on Amazon. And, I can’t imagine what it is like to lose four siblings. CF is brutal, especially when the medications and therapies haven’t been there. Also — I will be in North Carolina next month, but I am going to Charolette!-
I think all of my books are available through Amazon, though I haven’t looked recently.
When we were all growing up there wasn’t much talk about CF in the family, and about the only treatments available were antibiotics and back-slapping percussion. Terrible for our parents who had all those babies after WWII only to find out that the…-
May you remind me of the name of your books, and I’ll be sure to look them up. And, jeez — post WWII was such an apocalyptic space for the world, toppled with the news of CF… I can imagine you took on that identity to not want to have CF.
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The three books published since my transplant are :Bain’s New York. The City in News Pictures, 1900-1925; Sunny Land. Pictures from Paradise; and Some of Us. (The last two are collections of my photographs. You can see some of my pictures on my website: michaelcarlebach.com
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