Luisa Palazola

Sometimes I feel like at the mere age of 25 I’ve had my fair share of trauma and death. I know as I type this, I have no idea what tomorrow will bring and that sadness related to death probably won’t stop.

And, because of all of this. Whether it’s my own trauma from nearly bleeding out my lungs or losing a friend to this disease. I wonde…[Read more]

How Do We ‘Speak CF’ in a Way that Connects Us?

Talking with your friends and people outside of the CF sphere about CF often…[Read more]

I’m on a really exciting trial that has rocked my world, and dare I say, kept me healthy?

I think because I’ve spent so much of my life sick and in bed and feeling like sh*t, that sometimes I get really overwhelmed by the day to day “healthy life.” That I want to retreat to that feeling I know so well, that I know how to handle. I know how t…[Read more]

And, no not in that way. No one said dating was easy, but dating with CF is a weird balance of how vulnerable am I going to be? Honestly, working within CF, having a pair of lungs tattooed on your arms, and living with a terminal lung disease also make it increasingly difficult to not be open about CF. However, a lot of people don’t care and it be…[Read more]

An Open Letter to the ‘How Are You Feeling?’ Folks

Columnist Janeil Whitworth, I think sums up how confusing this question is. For me, I get overwhelmed with this question. I wonder often, is that all people think when they think of me, my health? But, at the same time, I’d also prefer they ask about my health, b…[Read more]

Pollen, spring, and general crumminess. I don’t know about you, but while I love the birth of life that spring brings. It also comes with severe allergies for me, that make me feel awful. I’m on two different allergy meds, and am wondering if I need more in my arsenal.

1. Do your allergies affect your CF?
2. How do you deal with allergies ove…

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CFTR2 is a website that provides information for patients, researchers, and the general public about specific variants in what is commonly referred to as the cystic fibrosis (CF) gene.

https://www.cftr2.org/welcome

This is a topic that I’ve been exploring a lot lately, as I am writing a piece from interviews with lung transplant recipients. I don’t think I could ever understand fully how beautiful the gift of life is, but as a bystander with a chronic illness that could render me needing transplant. It hits hard, I think the concept of someone dying so tha…[Read more]

Feeling Bad for Myself Is Part of Healing

It’s important to pause and process the turbulences that come with CF, for patient c…[Read more]

Hey guys, we’re honored to be able to share Jose as our MCM today. Jose is 26 years old and is from California. Here are 3 things important to HIS story with CF:⁣⁣⁣⁣ ⁣⁣⁣⁣
✊🏽I was born in LA and diagnosed with CF shortly after. My cousin Desiree also had CF ,which is what prompted my diagnosis. My mother coming from Mexico to the US, not speaking…[Read more]

Does Having CF Affect a Career Negatively or Positively?

CF News Today reached out to our community on Facebook and asked about job situations for people with CF, and columnist Elly Aylwin-Foster reflected of the vast array of answers we received. But, asks the question, what would I be like without…[Read more]