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Have you seen these stats before, our team at CF News Today came up with this neat infographic of strides recorded by the Cystic Fibrosis Foundation. And, I think it’s pretty phenomenal:
For, me it’s boggling to realize that I am one of those people. I am one of those people who has not only benefitted from the newer medications and…[Read more]
I’ve been dealing with pretty gnarly migraines over the last few weeks. I’m no stranger to migraines, in fact when I was 16, I was admitted because of getting migraines. That admission, I also had an MRI of my head — and, it turns out I have a birth abnormality called Arnold Chiari Malformation — type 1.5 to be exact. It’s the when the
Head’s up! The CFF hosts an annual virtual event for people with CF for a “weekend of sharing, connecting, and learning as we join together for a free, two-day virtual event to discuss experiences unique to people living with CF.” This year it it is Sept. 20 and 21. Sign up…[Read more]
1. Christina Randall’s channel. She is a becoming YouTuber who has chronicled her experiences in prison with rawness and realness; something totally foreign to me and I think offers a facet of life outside chronically ill life.
2. CG Kid is a recovering poly addict, and talks openly and honestly about drug addiction. Again, it’s something very…[Read more]
I wrote this a few months ago, it’s an unedited culmination of my thoughts on living with CF:
“It’s CF Awareness Month. There are a lot of ways people choose to see their disease, if they even want to see it as a disease.
This is how I feel:
CF has made me confront my own mortality. CF has made me confront mortality of those I love.
CF has s…[Read more]
I think what you consume (whether food, television, news, music, ANYTHING — impacts your mood and perhaps your ability to get better). At the very least, this music helps me feel a bit better, for various reasons (or for no apparent reason) Here are my top songs that I listen to when I feel like sh*t. Link me the music you like when you feel like…[Read more]
Last year I got my first real tattoo. I scheduled an appointment with an artist I had followed on IG and drove 3 hours to get a my piece done by him. After him postponing my original appointment and then kinda forgetting I was coming on our rescheduled date, a resilient best friend, and some coffee: I got my piece.
I won’t leave out the s…[Read more]
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