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Melanie

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@melanie

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    Melanie started the topic How to reduce liver enzyme levels in the forum Treatment routines, medicines, and the like 1 year, 8 months ago

    I started taking Trikafta in Dec 2019 and now my liver enzyme levels are 2x guideline. I’ve never had this problem before so I presume it is from Trikafta. I read in another forum that if liver enzyme levels get to 3x guideline then Drs will take you off the night-time dosage. Curious what others have done to reduce their liver enzyme levels.…[Read more]

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    Melanie started the topic markers or methods to help predict exacerbations? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    I just read this article about a study done in which it found markers to help indicate the likelihood of a child having an exacerbation in the near future.
    This is the first I’ve heard of anyone attempting to predict an exacerbation.
    Has anyone heard of other markers or methods to predict an exacerbation (beyond the obvious and free of…[Read more]

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    Melanie replied to the topic Self-esteem in the forum CF and Depression and Anxiety 2 years, 6 months ago

    Hi Tre
    Scott (Melanie’s husband) here.
    Yes… 100%. I can go from feeling ‘on top of the world’ to feeling low-confidence, depressed, worthless, etc. the next morning.
    For me… I felt the worst when I was laid off from work for 6 months.
    I think that we all need to feel as if we have a purpose. For some it might be to work or to provide for…[Read more]

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    Melanie became a registered member 2 years, 7 months ago

    • Profile picture of Luisa Palazola
      Luisa Palazola replied 2 years, 7 months ago
      Hey Melanie! Welcome to our forums family 🙂 I am Luisa and I also have CF (I’m 26!). I also manage our social media and love to collab ideas with our community. Let me know if you have any questions or topics of discussion you want to put out there. Would love to know if you’re eligible for Trikafta!

      Luisa
      IG: @cfnewstoday

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