• Hi Luisa,

    could you give us some advice, what should we do for our children to extend their lives and make for them better conditions.

  • I try to find some group of people to start an association and create the plan. Ask our government for better support. But it is log process and time is very important.

  • Dear Luisa

    Thank you for your answer. We are from Georgia (not USA). This country is in the Caucasus region of Eurasia. For breathing therapy we use nebuliser with Sodium chloride(NaCl 0.9%). He has Staphylococcus bacteria. We don’t use inhaled antibiotic, only pills. He gets Enzymes three times in a day, sometimes A,D,E vitamins and Cough…[Read more]

  • Hello 🖐️
    My son has cf, he is 10. We have some program of care in our country. In my opinion this program does not provide necessary care for cf children. Could you write the list of all drugs and procedures which you get from your clinics. Thank you

  • Nino became a registered member 1 month, 1 week ago

    • Nino – My name is Michael Morale, and I’m the Forums and Multimedia Director for Cystic Fibrosis News Today. I want to thank you for taking the time out of your day and becoming a member of our Cystic Fibrosis forum. Our job is to make sure that we provide you with the information that you’re looking for, and to try to assist you in any way possi…[Read more]

    • Hi Nino! My name is Tré LaRosa and I’m one of the Forum Moderators. Thanks for becoming a member! I’m excited about what this forum could become as a place for quality discussion and a welcoming place for the community. Looking forward to your contributions!

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