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@seamus-conlangmail-com
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Seamus Conlan started the topic Anxiety associated with being denied necessary medication in the forum CF and Depression and Anxiety 2 weeks, 4 days ago
My son Zack is currently on NG tube feeding in Temple Street hospital, Dublin, Ireland and will have a PEG inserted in September 2019 (this suffering would of course be unnecessary if the EMA allowed him access to Kalydeco as is the case in the US and Australia). Zack has the R117H gating gene alteration.
The European Medicines Agency (EMA)…[Read more]
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Seamus Conlan posted a new activity comment 4 months, 1 week ago
Hi Tre,
When you get a chance to read the information I sent on, can you let me know what you think please? I would really like to get an objective opinion on this? -
Seamus Conlan posted a new activity comment 4 months, 1 week ago
My son Zack is starting on his CF journey and I hope to use the forum as a support system to allow me help Zack in whatever way I can. -
Seamus Conlan became a registered member 4 months, 1 week ago
Hi Seamus! Thanks for registering, I’m Tré, one of the forum moderators. What is something you’re really hoping to gain from the forums?
When you get a chance to read the information I sent on, can you let me know what you think please? I would really like to get an objective opinion on this?