• Tim Blowfield replied to the topic Feeling grateful in the forum Adults​ ​With​ ​Cystic Fibrosis 7 months, 3 weeks ago

    Thanks Jenny and Paul,

    Your discussion of what has happened post starting trikafta/kaftrio is very important. May be CF was was protecting you from other respiratory problems. (Sickle Cell Anemia largely protects against malaria. Not sure which is better!) Such protection can lead to selection for a mutation – what may CF do?

    • Um, that is fascinating about sickle cell and malaria! I actually take a medication called Quinidine for my heart, and it was originally used to treat malaria. I’m on it full time but always think… How the heck did they figure out that this also helps rare heart patterns? It’s fascinating to me! (How many times can I say fascinating? haha)

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