@williamryan
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William Ryan replied to the topic When to stop working in the forum Adults With Cystic Fibrosis 1 day, 21 hours ago
That’s fantastic that you had a great firm that was really willing to fight for you and believed in you! Keep up the good work with Vests 4 Life!
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William Ryan started the topic When to stop working in the forum Adults With Cystic Fibrosis 1 week, 1 day ago
COVID-19 aside, working a job in person isn’t always easy for people with cystic fibrosis. While working from home has benefited many, there are still those among us who aren’t as lucky and able to work.
What is your current employment status while living with CF? If you have stopped working, how did you decide, and was it difficult for you?
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William Ryan wrote a new item 1 week, 1 day ago
COVID-19 aside, working a job in person isn’t always easy for people with cystic fibrosis. While working from home has benefited many, there are still those among us who aren’t as lucky and able to wor
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William Ryan replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 2 weeks, 1 day ago
It’s awesome you’re able to take a modulator, even with a rare mutation. Hopefully there are quicker hospital stays for you along the horizon
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William Ryan replied to the topic What are some books you’ve been reading the last month? in the forum Adults With Cystic Fibrosis 2 weeks, 4 days ago
What book would you recommend to start?!
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William Ryan replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 2 weeks, 4 days ago
We must always realize the truth you said, we cannot have good days without some bad.
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William Ryan replied to the topic Favorite sports fandom memory? in the forum Adults With Cystic Fibrosis 2 weeks, 4 days ago
The best! Go Melissa!
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William Ryan replied to the topic Monthly wins? in the forum Adults With Cystic Fibrosis 2 weeks, 4 days ago
Vacation, especially in Hawaii, is always a win!
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William Ryan replied to the topic Side effects from antibiotics? in the forum Adults With Cystic Fibrosis 2 weeks, 4 days ago
It’s a double edged sword, but it’s a sacrifice we must make!
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William Ryan started the topic Side effects from antibiotics? in the forum Adults With Cystic Fibrosis 3 weeks ago
All of us are no strangers to antibiotics. Some antibiotics carry side effects that we’d prefer not to have and that do not agree with our bodies. From personal experience, I experienced migraines for a few days on one antibiotic.
What are some side effects for you that you do not want to deal with? What are some side effects that you can push…[Read more]
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William Ryan wrote a new item 3 weeks ago
All of us are no strangers to antibiotics. Some antibiotics carry side effects that we’d prefer not to have and that do not agree with our bodies. From personal experience, I experienced migraines for a few days
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William Ryan replied to the topic Finding community as a person with CF in the forum Diagnosis Information and General Questions 3 weeks, 1 day ago
Usually, I deal with feelings of isolation and loneliness by writing my thoughts out or just spending time with my dogs and wife. They’re the best company you can keep! Nowadays, I find community through the larger cf community online by relating to their stories and hopefully, maybe, they’ll relate to mine.
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William Ryan started the topic Monthly wins? in the forum Adults With Cystic Fibrosis 4 weeks, 1 day ago
I’m going to copy my former colleague Jenny here and ask all of you the same!
What is a “win” you’ve experienced in the last month? Related to CF or other areas of life; big or small, silly or profound. Tell me something that you’ve been blessed with, a thing you’re kicking butt at, or an accomplishment you’re proud of.
Let’s cel…[Read more]
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William Ryan wrote a new item 4 weeks, 1 day ago
I’m going to copy my former colleague Jenny here and ask all of you the same! What is a “win” you’ve experienced in the last month? Related to CF or other areas of life; big or small, silly or profoun
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William Ryan started the topic Favorite sports fandom memory? in the forum Adults With Cystic Fibrosis 1 month ago
In last week’s column, I wrote about my favorite American football team, the New York Giants, and their win at Super Bowl XLII. Fifteen years later, it remains my favorite moment as a sports fan. While we do have a lot of Americans here, we also have a lot of people from across the globe and I’m sure they may have a favorite moment from foo…[Read more]
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William Ryan wrote a new item 1 month ago
In last week’s column, I wrote about my favorite American football team, the New York Giants, and their win at Super Bowl XLII. Fifteen years later, it remains my favorite moment as a sports fan. While we do h
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William Ryan replied to the topic A farewell of sorts in the forum Adults With Cystic Fibrosis 1 month, 1 week ago
You’ll be missed as a moderator, but we are glad you’re staying on as a member! Your input into this community is necessary and appreciated. Above all, I hope whoever fills your shoes next (me) does as good of a job as you’ve done!
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William Ryan replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 1 month, 1 week ago
It’s okay! I’m not (yet) eligible either, but maybe one day we will be. One can hope.
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William Ryan replied to the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 1 month, 1 week ago
I didn’t know there was an age limit for the modulators! That’s actually really upsetting to hear. I’d really try to see if you can get them. I know this last go around I didn’t feel “better” until I was done with my home IV either. I really wish you the best of luck with your journey!
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William Ryan started the topic What do you find is the reason behind most of your hospital stays? in the forum Adults With Cystic Fibrosis 1 month, 1 week ago
In October of 2021 AND 2022, I found myself in the hospital for pneumonia. I’m hoping the third time isn’t the charm this year. Coincidentally, I was admitted on the same day, October 25th.
Prior to this, I was admitted to the hospital over the years for a bunch of different reasons like complications from anesthesia, asthma, and dia…[Read more]
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