Cystic Fibrosis News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • COVID-19
  • What can we help you find today?

Paul met Debbie

Home Members Paul met Debbie
show less show more
Profile picture of Paul met Debbie

@jpaul

@bailey-vincent That’s good to hear, keep it up! View
  • Activity
  • Profile
  • Friends 1
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Paul met Debbie

    Paul met Debbie started the topic Sunday Morning (69) Kidney Surgery in the forum Adults​ ​With​ ​Cystic Fibrosis 7 months, 3 weeks ago

    I have not been writing lately. This is because my kidney stone surgery has been sooner than anticipated. Although the surgery went well, it took every bit of my physical and mental reserves. In other words, I currently need all my energy left to recuperate and restore the balance in my system first. Fortunately, Debbie and the docs are doing a…[Read more]

  • Profile picture of Paul met Debbie

    Paul met Debbie wrote a new item 7 months, 3 weeks ago

    I have not been writing lately. This is because my kidney stone surgery has been sooner than anticipated. Although the surgery went well, it took every bit of my physical and mental reserves. In other words, I

  • Profile picture of Paul met Debbie

    Paul met Debbie posted a new activity comment 8 months ago

    Hi Jenny,

    thanks for asking! Indeed I have been absent for a while.
    As I mentioned earlier, I was on the waitinglist for a kidneystone surgery (URS). This happened last week and it went well. Only it took a lot of my energy, physicallly ad mentally, and I am still recovering from that.

      View Conversation
      • Profile picture of Jenny Livingston
        Jenny Livingston replied 8 months ago
        I am so glad to hear that it went well! I wish you a full and smooth recovery. Rest up and we’ll look forward to hearing more from you as you feel able.
      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Has any doctor changed your life? in the forum Adults​ ​With​ ​Cystic Fibrosis 8 months, 2 weeks ago

        Good question. Almost all doctors I had, influenced my life and so are the doctors that assist me right now. Without medical assistance I would not be alive at all right now. I guess the doctor who foremost changed my life was my psychiatrist when I was a young adult. I was no able to come to grip with the transition from living a sheltered life…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie started the topic Sunday Morning (68): What about the Kidney? in the forum Adults​ ​With​ ​Cystic Fibrosis 8 months, 3 weeks ago

        So, what about the kidney?

        Recently I became interested in my kidneys. I was never before. I think this is, because the kidney is one of my “silent” organs. Some organs in the body I can clearly notice. I feel and hear my lungs when air rushes in and out, I feel my heart beating in my chest and veins and I can make this visible even on my lit…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie wrote a new item 8 months, 3 weeks ago

        So, what about the kidney?

        Recently I became interested in my kidneys. I was never before. I think this is, because the kidney is one of my “silent” organs. Some organs in the body I can clearly notice. I fee

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic A (re)introduction in the forum Adults​ ​With​ ​Cystic Fibrosis 8 months, 3 weeks ago

        Welcome back, Luisa! Good to hear Trikafta is beneficial to you too.

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic How is your relationship with your CF care team? in the forum Adults​ ​With​ ​Cystic Fibrosis 8 months, 4 weeks ago

        Pretty good actually. I know my cf-nurse since 2002, she is the constant and golden factor in my team. My current pulmonologist is my doctor since a few years, and we communicate very well. He is my third pulmonologist in this hospital, the two before that got promoted away. And before that I had three different pulmonologists in my life in three…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie started the topic Sunday Morning (67): On the waiting list in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months ago

        Recently, in April,  I suffered a renal colic. A kidney stone descended and became stuck between the kidney and the bladder. That is what we found out 3 weeks later, on making a CT scan. Pwcf are more prone to developing kidney stones due to the suppletion of calcium/vitamin D, taking large quantities of medication and the altered digestion and…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie wrote a new item 9 months ago

        Recently, in April,  I suffered a renal colic. A kidney stone descended and became stuck between the kidney and the bladder. That is what we found out 3 weeks later, on making a CT scan. Pwcf are more prone to

      • Profile picture of Paul met Debbie

        Paul met Debbie started the topic Sunday Morning (66): Revisiting Carpe Diem in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months, 1 week ago

        Two weeks ago my Sunday morning contemplation was about the aphorism “Carpe Diem”. “Seize the day” is the most common understanding of this. I offered three quotes about getting older, birth and death, but on close inspection these were also about another aphorism, called “Memento Mori”.

        So I revisited the subject and wrote a Tale about it, this…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie wrote a new item 9 months, 1 week ago

        Two weeks ago my Sunday morning contemplation was about the aphorism “Carpe Diem”. “Seize the day” is the most common understanding of this. I offered three quotes about getting older, birth and death, but on

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Trikafta and Mental Health in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 9 months, 1 week ago

        Jenny, when reading the article I thought of you immediately!

        It is good to know that these side effects are on the agenda now, and that dose-reduction can be a good solution.

        Trikafta has not influenced my mental health as far as I know. Only some light changes in my sleeping pattern with occasional problems of falling asleep in the night. I…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie started the topic Sunday Morning (65): Writing with a fountain pen in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months, 2 weeks ago

        “None of us can have as many virtues as the fountain pen, or half of its cussedness – but we can try”,

        said Samuel Langhorne Clemens  (1835 – 1910). We know him by his pen name Mark Twain, the father of American literature.

        American literature is not very well known to me, but (next to some poems by T.S. Eliot) I have read Huckleberry Finn…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie wrote a new item 9 months, 2 weeks ago

        “None of us can have as many virtues as the fountain pen, or half of its cussedness – but we can try”,

        said Samuel Langhorne Clemens  (1835 – 1910). We know him by his pen name Mark Twain, the father of

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Bacteriophage Therapy Success Story in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months, 2 weeks ago

        I found a good article by Kelly Todd about the difficulties in patenting phages.

        See https://scholarship.law.duke.edu/dlj/vol68/iss4/3/

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Bacteriophage Therapy Success Story in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months, 2 weeks ago

        • This is a promising therapy that has been developped and known for decades in the former soviet union, driven by a lack of many of the antibiotics of the free Western world. Currently, Russia, Georgia and Poland are known centers for phage development and use.
        • I would  certainly consider phage therapy if needed. It seems to be very…

        [Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie started the topic Sunday Morning (62) What Carpe Diem means in the forum Adults​ ​With​ ​Cystic Fibrosis 9 months, 3 weeks ago

        What Carpe Diem Means 5 June 2022

        Recently, Nicole Kohr wrote one of her lovely and lively tales, this time it was about the Joy of Aging. You can find it here, highly recommended!

        https://cysticfibrosisnewstoday.com/2022/05/12/when-i-grow-up-aging-cf-is-gift/

        I wrote a sunday morning talk about this last month, but didn’t publish it so…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Day 27 of #31DaysOfCF: My Sister’s Journey Inspired Me to Become an Advocate in the forum 31 Days of CF 2022 9 months, 3 weeks ago

        I don’t advocate CF in particular because I don’t identify with it. But I advocate life, of which CF is a natural part.

        I can relate to how siblings can influence the lives of each other. My brother Rudy had CF and he died before I was born, so in a  way I also carry his torch and by living the life, contribute to what he started. Not as a pwcf,…[Read more]

      • Profile picture of Paul met Debbie

        Paul met Debbie replied to the topic Day 28 of #31DaysOfCF: Our Son’s Journey Through Diagnosis and Treatment in the forum 31 Days of CF 2022 9 months, 3 weeks ago

        What a great picture of Bautista!

        Treatments are part and parcel of CF. I absorbed my treatments in my daily life to the extend that it doesn’t feel like “doing” anymore, it goes by itself. In the course of my 58 years with CF I learned how flexible I can get with this without harming, which depends on the sort of medication. CF is relatively…[Read more]

      • Load More
      Profile Photo Katie Profile Photo Mark Tremblay

      Register

      Forums search

      Generic selectors
      Exact matches only
      Search in title
      Search in content
      Post Type Selectors
      Search in posts
      Search in pages

      Who’s Online

      There are no users currently online

      Newest Topics

      • When to stop working by William Ryan
      • A message of hope for parents in the CF community by Kevin Schaefer
      • Side effects from antibiotics? by William Ryan
      • Finding community as a person with CF by Kevin Schaefer
      • Monthly wins? by William Ryan

      Recent Replies

      • What do you find is the reason behind most of your hospital stays?
      • What do you find is the reason behind most of your hospital stays?
      • What are some books you’ve been reading the last month?
      • What do you find is the reason behind most of your hospital stays?
      • Favorite sports fandom memory?

      Members

      Newest | Active | Popular
      • Profile picture of Kevin Schaefer
        Kevin Schaefer
        Active 4 hours ago
      • Profile picture of William Ryan
        William Ryan
        Active 5 hours, 27 minutes ago
      • Profile picture of Janice Hankins
        Janice Hankins
        Active 21 hours, 49 minutes ago
      • Profile picture of Rudy Steele
        Rudy Steele
        Active 1 day, 14 hours ago
      • Profile picture of Joe Pierce
        Joe Pierce
        Active 2 days ago

      Forums

      • 31 Days of CF 2022
      • Coronavirus (COVID-19) and CF
      • Friends and Family of people with Cystic Fibrosis
      • Man Crush Monday
      • Trikafta: Triple Combination CFTR Modulator
      • Women Crush Wednesday
      • Adults​ ​With​ ​Cystic Fibrosis
      • 31 Days of CF
      • CF Science and Research
      • Cystic Fibrosis ​and​ ​Dating/Relationships
      • Cystic Fibrosis Resources
      • Introductions
      • Using our forums
      • Treatment routines, medicines, and the like
      • Going​ ​To​ ​College​ ​When​ ​You​ ​Have​ ​Cystic Fibrosis
      • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      • CF and Depression and Anxiety
      • Most popular topics
      • Topics with no replies

      Cystic Fibrosis News Today

      BioNews Services, LLC
      3 W Garden St
      Suite 700
      Pensacola, FL 32502
      Email: [email protected]
      Phone: +1-800-936-1363
      • Email Forum Support
      • Publishing Team
      • Leadership
      • Our Culture
      • Corrections Policy
      • Careers
      • Contact Us
      • Terms of Service
      • Privacy Policy
      • Disable Notifications
      • Advertising Policy

      Disclaimer

      Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

      BioNews, Inc.

      3 W Garden St
      Suite 700
      Pensacola, FL 32502
      Website: bionews.com
      Email: [email protected]
      Phone: 1-800-936-1363

      • Email Forum Support
      • Publishing Team
      • Leadership
      • Our Culture
      • Corrections Policy
      • Careers
      • Contact Us
      • Terms of Service
      • Privacy Policy
      • Disable Notifications
      • Advertising Policy
      Disclaimer

      This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

      Copyright © 2017-2023 All rights reserved.

      ©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen