Paul met Debbie

typo correction: where I wrote

“It is always wise to prevent obstruction in the bowel or hard stools. So, increasing the amount of Solmucol is not wise as a precaution”.

I meant to say:

“It is always wise to prevent obstruction in the bowel or hard stools. So, increasing the amount of Solmucol is wise as a precaution”.

Hello Jean,

Thanks for your good question.

It is not entirely clear to me what you mean when saying that the doctor has increased the doses of Creon. Does your daughter take more pills with the same meal (relative increase in Creon), or does she take more pills because she eats bigger meals now, or because she eats more often (absolute increase…[Read more]

From fda.gov:

“The Moderna COVID-19 single booster dose is half of the dose that is administered for a primary series dose and is administered at least six months after completion of a primary series of the vaccine”.

So, side effects may be milder than the original vaccine you had.

We will get our flu shot next week. Mostly we have no…[Read more]

Good subject!
Completely agree with you about not holding back and sharing love as much as possible, Jenny.

I can’t share your interest for funerals however. Perhaps I didn’t go to the good ones yet 😉 If there is life music, it becomes more bearable and less formal. The best memory I have is my mother’s funeral, because I got to talk in the…[Read more]

Yes, those lithium ion batteries for the Pari trek S only last for so long. Fortunately, this one is replaceable and not that expensive.
I use the Pari e-flow mesh nebulizer, it’s compact (fits in my pocket like a disc-man), ultra light weight and uses AA batteries (I use it with rechargeable batteries) or an adapter, which is cheap. It’s my only…[Read more]

Hello Bailey, good to see you’re back again. My fun thing is that I fell in love. It’s in the sundaymorning talk.

🙂 Thanks, I did! Today I offered her some grass and she ate it right out of my hand. We are on eating terms now.

Oops, this addendum belongs to Williams question about switching doctors. I put it there as well now, to be sure. Sorry.

… and very important: if and when letting go announces itself, make sure it comes from acceptance and not from resistance. Check your mindset carefully. If you first fully came to terms with it and are in peace, then the chances of finding a benevolent continuation are far more conducive. Your next doctor is already there, finding is much more easy then.

… and very important: if and when letting go announces itself, make sure it comes from acceptance and not from resistance. Check your mindset carefully. If you first fully came to terms with it and are in peace, then the chances of finding a benevolent continuation are far more conducive. Your next doctor is already there, finding is much more…[Read more]

As you say, William, you love your doctor. It’s (like) an intimate relationship indeed. So, when do you know it’s time to divorce? When there is still love even. But you have the feeling that your best interests are no longer taken care of by this person. That you can’t trust him of her with your life anymore. That you don’t understand each other…[Read more]

As you say, William, you love your doctor. It’s (like) an intimite relationship indeed. So, when do you know it’s time to divorce? When there is still love even. But you have the feeling that your best interests are no longer taken care of by this person. That you can’t trust him of her with your life anymore. That you don’t understand each other…[Read more]

I have talked on the forum about my employment earlier, in this post

https://cysticfibrosisnewstoday.com/forums/forums/topic/what-do-you-do-for-work/

and also in this post

https://cysticfibrosisnewstoday.com/forums/forums/topic/disability-employment-awareness-month-whats-your-story/

I have never felt the label of disability apply to me. As all…[Read more]

I have been letting go of clothes all my life. Both when (young) my growing body became too large, and when (older and losing weight due to lung function decline) my shrinking body became too small. Letting go is indeed liberating and I never had any regrets about it. Sometimes I had the joy however of clinging to some garments for sentimental…[Read more]

Great to hear that your week went so well, despite of the surgeries, Bailey! Quite an achievement indeed.

Like Jenny, I also got rid of some stuff, in my case trousers that didn’t make the circumference of my belly anymore. Kaftrio made me gain 8 pounds, which has spread relatively well all over my lovely features, but the lower parts of the body…[Read more]

Ah yes, I remember seeing her on YouTube when she reported about the use of Kaftrio. She is doing very well on it.