@jennifer-livingston
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Jenny Livingston started the topic 31 Days of CF: My Dream to Be a Mother Is Finally a Reality in the forum 31 Days of CF 3 days, 19 hours ago
Day 9 of 31 Days of CF
Topic: My Dream to Be a Mother Is Finally a Reality
“My dream to be a mother is finally a reality. I am constantly in awe of how my chronically ill body has persevered and hasn’t given up on me this last year.” – Emily Lefebvre
This story was originally shared on Instagram on Mother’s Day (again, we plan to run t…[Read more]
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Jenny Livingston started the topic 31 Days of CF: I made it to the other side in the forum 31 Days of CF 5 days, 11 hours ago
Day 7 of 31 Days of CF
Topic: I Made It to the Other Side
For years I watched people walk by my apartment, thinking “these people have no idea how blessed they are to be breathing and walking right now.” – Todd Alan Breland
Read Todd’s inspiring story in it’s entirety on Instagram or on the CF News Today main website: 31 Days of CF:…[Read more]
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Jenny Livingston replied to the topic New blog post about ableism in the forum Adults With Cystic Fibrosis 6 days, 11 hours ago
William, thank you so much for sharing this! Reading your thoughts, I found myself reminiscing about times in my life when similar things have happened. I’m far more likely to say something now than I was as an awkward, sometimes painfully shy teen. I also have a tendency to make and share passive aggressive/snarky IG reels on the subject, heh.…[Read more]
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Jenny Livingston started the topic 31 Days of CF: My Faith Guides Me in the forum 31 Days of CF 1 week, 2 days ago
Day 5 of 31 Days of CF
Topic: My Faith Guides Me
“My faith in Christ has led me to today and brought me through pain and heartache I didn’t know I could conquer, only to find joy that I didn’t know was possible.” – Emilee Pehrson
Read the full story from @miracles_happen_em on Instagram or CF News Today’s main website: 31 Days of CF:…[Read more]
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Jenny Livingston started the topic 31 Days of CF: A Mother's Perspective in the forum 31 Days of CF 1 week, 3 days ago
Day 4 of 31 Days of CF
Topic: A Mother’s Perspective
“From a mother’s perspective, I say just breathe and enjoy your little one. CF is just a part of Amelia’s story.” – Tonya Lantis
You can read @liam.milliesmomma’s story on Instagram or on the CF News Today main website: 31 Days of CF: A Mother’s Perspective (cysticf…[Read more]
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Jenny Livingston replied to the topic Let's Get High Together…… in the forum Adults With Cystic Fibrosis 1 week, 3 days ago
Something that gets me high (heh, I like talking about it in this way) that I had no idea I’d enjoy so much is public speaking. I’ve had the opportunity in recent years to speak to groups of varying sizes, and it turns out that I LOVE IT! It provides such a rush of endorphins for me.
Another guaranteed high? Seeing my daughter succeed at…[Read more]
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I used to genuinely barter with my college professors to let me write a paper instead of speak in front of the class. I remember a professor once saying, “You’d rather write a 5-page paper, which is three times as much work, than speak for 5 minutes?” and I was like “Yup” and did (lol). So… you amaze me! I definitely am not afraid of public…[Read more]
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Jenny Livingston started the topic Day 3 of 31 Days of CF Topic: My Health Is More Than Charts and Numbers in the forum 31 Days of CF 1 week, 4 days ago
“Why must doctors feel more confident looking at charts and numbers instead of listening to their patients’ concerns?” – Lauren D’Amato
Read Lauren’s full story on Instagram or the CF News Today Website: 31 Days of CF: My Health Is More Than Charts and Numbers (cysticfibrosisnewstoday.com)
Have you ever felt like your doctors pay more a…[Read more]
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Jenny Livingston replied to the topic 31 Days of CF: The Importance of Exercise and a Strong Mindset in the forum 31 Days of CF 1 week, 4 days ago
Piano lifting seems like a reasonable first step, Paul. Hah! 😂
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Jenny Livingston started the topic Health insurance issues in the forum Adults With Cystic Fibrosis 1 week, 5 days ago
I was talking with a friend of mine last night who is currently sick, but also facing the termination of her health insurance. She is unsure if/when she will be able to secure health insurance and get the care she needs. It’s both heartbreaking and scary.
Unfortunately, here in the United States, this is not terribly uncommon. In my life,…[Read more]
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Jenny Livingston started the topic 31 Days of CF: My Metamorphosis as a CF Mom in the forum 31 Days of CF 1 week, 6 days ago
Throughout the month of May, which is CF Awareness month, CF News Today will be featuring a from story within the community each day. We’ll be sharing those stories here on the forum (although since we’ll be sharing on weekdays only, the posts will spill over into June) and they can also be found on Cystic Fibrosis News Today – Home – Cystic…[Read more]
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Jenny Livingston posted a new activity comment 1 week, 6 days ago
Hello! I wanted to jump in and quickly introduce myself! I’m Jenny, 33 with CF and a moderator here. As Bailey mentioned, I’ve been away from the forum working on another project, but will be back in full force very soon. Thanks for joining us here! I look forward to getting to know you more. -
Jenny Livingston replied to the topic Super Excited… Happy Happy News! in the forum Adults With Cystic Fibrosis 1 week, 6 days ago
Oh, Bailey, this news makes me so incredibly happy!
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Jenny Livingston started the topic Monday Shoutout: American Association of People with Disabilities in the forum Adults With Cystic Fibrosis 2 weeks, 6 days ago
Shout Out to the American Association of People with Disabilities (AAPD)!⠀
@aapdofficial is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities. As a national cross-disability rights organization, AAPD advocates for full civil rights for the over 60 million Americans with di…[Read more] -
Jenny Livingston replied to the topic Sunday Morning (8) in the forum Adults With Cystic Fibrosis 3 weeks ago
Beautiful, as always. My littlest dog pooped on the rug this morning, yet still, like Buddha, gave me the most adorable look hoping for a reward, hah! I’m generally an early riser myself. Those quiet moments spent with the animals and a cup of coffee are always a favorite way to start the day (even more enjoyable when they don’t involve dog poop).
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Jenny Livingston posted a new activity comment 3 weeks ago
Hello, Irene! Welcome to the forum! I’m Jenny, one of the moderators here. If you ever need help navigating the forum, or there’s every something specific you’d like to talk about, please don’t hesitate to reach out. Along with my friend and co-moderator, Bailey (whom you’ll be meeting soon), I’m thrilled that you’re here and happy to help. I look…[Read more]
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Jenny Livingston posted a new activity comment 3 weeks, 4 days ago
Lauren, hello! As Bailey said, we are so glad you are here and thank you tremendously for participating in the 31 Days project. I look forward to getting to know you. Please reach out if you ever need help navigating the forum or just want to chat.
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Jenny Livingston started the topic Monday Shoutout: The Salty Life Foundation in the forum Adults With Cystic Fibrosis 3 weeks, 6 days ago
Shout Out to The Salty Life Foundation!⠀
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@thesaltylifecf is a non-profit foundation that believes in family, inclusiveness, diversity, and equality. They shine a spotlight on important topics in the CF community and share personal stories that inspire hope and encourage others.⠀
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The Salty Life Foundation also publishes a magazine…[Read more] -
Jenny Livingston started the topic Weekly Wins – tell me yours in the forum Adults With Cystic Fibrosis 1 month ago
I’ve been away from the forum while I spend time working on another project, but I want to continue sharing our Weekly Wins: a new, recurring topic meant to be celebratory and uplifting.
So tell me, in the past week or so, what is a “win” you’ve experienced? Related to CF or other areas of life; big or small; silly or profound. Tell me somet…[Read more]
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We are SO connected because I just posted something really similar… Eek! I’ll back of the Highs and Lows of the week and let you take the wins next week because, well.. It’s a win-win? (Too punny? Terrible?)
My win was a doctor appointment I had this week, in which what I thought was wrong with my body and had been saying felt wrong with my…[Read more]
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Jenny Livingston replied to the topic Monday Shoutout: Cystic Fibrosis Community Care in the forum Adults With Cystic Fibrosis 1 month ago
Judy, this is very kind, but I’m not sure which post you might be referring to. I haven’t been on the forum very much lately, as I am spending more time working on another project for CF News Today. Your thoughts and sweet words are appreciated though. I hope you are doing well!
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Jenny Livingston started the topic Monday Shoutout: Cystic Fibrosis Community Care in the forum Adults With Cystic Fibrosis 1 month ago
Shout Out to Cystic Fibrosis Community Care.⠀
@cfcommunitycare‘s mission is to promote awareness of CF, provide support, advocacy and information to the CF community, and fund medical research into the fight against CF.⠀
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As a member of the national CF federation in Australia and a non-profit, CFCC works with the communities of New South…[Read more] - Load More
I loved her story so much but especially that baby photo!