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Jenny Livingston

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@jennifer-livingston

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  • Profile picture of Jenny Livingston

    Jenny Livingston started the topic Recent Favorites/Fun Activities in the forum Adults​ ​With​ ​Cystic Fibrosis 1 hour, 40 minutes ago

    So far, this summer has been full of activity for my family. We’ve spent time at a semi-local amusement park, enjoyed several days at the lake, had out-of-state family come to visit, and are currently getting ready to head out on a small weekend getaway. I’m so grateful that circumstance and my health have allowed all these things to hap…[Read more]

  • Profile picture of Jenny Livingston

    Jenny Livingston wrote a new item 1 hour, 40 minutes ago

    So far, this summer has been full of activity for my family. We’ve spent time at a semi-local amusement park, enjoyed several days at the lake, had out-of-state family come to visit, and are currently getting r

  • Profile picture of Jenny Livingston

    Jenny Livingston posted a new activity comment 1 hour, 43 minutes ago

    Alex, hello and welcome to the forum! I’m Jenny, one of the forum moderators. Thanks so much for joining us here. I hope you find a sense of community, information, and support here. Please feel free to reach out if you have any questions or need help with the forum. I’m happy to help and look forward to getting to know you.

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    • Profile picture of Luisa Palazola
      Luisa Palazola replied 55 minutes ago
      Hiya Alex, welcome to the forum! I am Luisa and I also have CF — and am one of the forum moderators. I noticed you are newly diagnosed, which I am sure is so hard. If Jenny or I can help in anyway, we’d be more than happy to be a part of the journey! CF isn’t easy, but the CF community are an incredible group of people!
    • Profile picture of Jenny Livingston

      Jenny Livingston replied to the topic A (re)introduction in the forum Adults​ ​With​ ​Cystic Fibrosis 1 day, 5 hours ago

      LUISA!!! I can’t express how dang excited I am that you’re back here with us! I’m also thrilled that some of our new members will have the chance to get to know you and all your loveliness.

    • Profile picture of Jenny Livingston

      Jenny Livingston posted a new activity comment 1 day, 5 hours ago

      Hi, Zack, and welcome to the forum! I’m Jenny, one of the forum moderators. If you find yourself needing help with anything, please don’t hesitate to reach out. I am happy to help and so glad that you’ve joined us here. I hope that you’ll find the forum to be an interesting, fun, and supportive place.

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    • Profile picture of Jenny Livingston

      Jenny Livingston posted a new activity comment 1 day, 5 hours ago

      Hello, Kezley! Welcome to the forum! I’m Jenny, one of the moderators here. Please feel free to reach out if you need help with anything or have any questions. I’m happy to help and so glad that you’ve joined us here. I look forward to getting to know you!

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    • Profile picture of Jenny Livingston

      Jenny Livingston posted a new activity comment 6 days, 18 hours ago

      Kim, hello and welcome to the forum! I’m Jenny, one of the moderators here. Please don’t hesitate to reach out if there is anything I might be able to help you with. I’m so glad you’ve joined us here and am excited to get to know you!

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    • Profile picture of Jenny Livingston

      Jenny Livingston started the topic What do you wish doctors understood about living with CF? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 week, 1 day ago

      In this post, Bailey asked, “What do you wish people without CF knew about living with CF?” It can certainly be frustrating when others don’t understand certain limitations or effects of our disease, including healthcare providers at times. I want to continue the conversation Bailey started but take it a step further. What is something you wish d…[Read more]

    • Profile picture of Jenny Livingston

      Jenny Livingston wrote a new item 1 week, 1 day ago

      In this post, Bailey asked, “What do you wish people without CF knew about living with CF?” It can certainly be frustrating when others don’t understand certain limitations or effects of our disease, inclu

    • Profile picture of Jenny Livingston

      Jenny Livingston posted a new activity comment 1 week, 1 day ago

      Guiva, hello and welcome to the forum! I’m Jenny, one of the forum moderators. I am here to help if you ever need it, and I look forward to getting to know you. Thanks so much for joining us here!

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      • Profile picture of Luisa Palazola
        Luisa Palazola replied 6 days, 23 hours ago
        Hola Guiva! Espero que estes bien — yo soy Luisa is soy una des las moderadoras para este foro. Si tienes algunas preguntas, estaré a la orden!
      • Profile picture of Jenny Livingston

        Jenny Livingston replied to the topic How is your relationship with your CF care team? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 week, 3 days ago

        William, I love to read responses like yours. I feel fortunate to have a similar relationship with both my doctors.

      • Profile picture of Jenny Livingston

        Jenny Livingston replied to the topic Sunday Morning (66): Revisiting Carpe Diem in the forum Adults​ ​With​ ​Cystic Fibrosis 1 week, 5 days ago

        The other side of the coin/birth and death interpretation is my favorite. The end is inevitable, so take this moment to breathe, to love, to enjoy, to exist. ♥

      • Profile picture of Jenny Livingston

        Jenny Livingston started the topic How is your relationship with your CF care team? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 week, 6 days ago

        How frequently do you see your CF team (either virtually or in person) and what is your relationship with them like? Are you able to comfortably partner with them in your care decisions? Do you feel there is mutual trust there? I’d love to hear about your CF care team experiences – good, difficult, and everything in between.

      • Profile picture of Jenny Livingston

        Jenny Livingston wrote a new item 1 week, 6 days ago

        How frequently do you see your CF team (either virtually or in person) and what is your relationship with them like? Are you able to comfortably partner with them in your care decisions? Do you feel there is

      • Profile picture of Jenny Livingston

        Jenny Livingston started the topic Trikafta and Mental Health in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 6 days ago

        We’ve talked about the mental health side effects of Trikafta here on the forum a handful of times. I was intrigued when I saw this article pop up on my newsfeed recently (Reducing Trikafta Dose May Ease Mental Side Effects in CF Patients). It details my personal experience almost to a tee. I am so glad to know that these mental health side e…[Read more]

      • Profile picture of Jenny Livingston

        Jenny Livingston wrote a new item 2 weeks, 6 days ago

        We’ve talked about the mental health side effects of Trikafta here on the forum a handful of times. I was intrigued when I saw this article pop up on my newsfeed recently (Reducing Trikafta Dose May Ease Mental S

      • Profile picture of Jenny Livingston

        Jenny Livingston posted a new activity comment 3 weeks, 6 days ago

        Chuck, hello and welcome to the forum! I’m Jenny, one of the moderators here. Please reach out anytime if I can help you navigate the forum or answer any questions you may have. I am happy to help and so glad that you’ve joined us here!

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      • Profile picture of Jenny Livingston

        Jenny Livingston replied to the topic Sunday Morning (62) What Carpe Diem means in the forum Adults​ ​With​ ​Cystic Fibrosis 3 weeks, 6 days ago

        I love Nicole’s writing; thanks for sharing her article here. I fully agree with you both — aging is a beautiful gift. I also like the quote you shared from Osho. It resonates deeply within me.

      • Profile picture of Jenny Livingston

        Jenny Livingston started the topic Bacteriophage Therapy Success Story in the forum Adults​ ​With​ ​Cystic Fibrosis 1 month ago

        This article was recently shared by CF News Today and I really wanted to talk about it here. I’ve heard of “phage therapy” off and on for the last several years, but this is the first time I’ve read of it resulting in the total eradication of antibiotic-resistant lung infection. CFTR modulators have garnered so much attention in recent years (…[Read more]

      • Profile picture of Jenny Livingston

        Jenny Livingston wrote a new item 1 month ago

        This article was recently shared by CF News Today and I really wanted to talk about it here. I’ve heard of “phage therapy” off and on for the last several years, but this is the first time I’ve read of it resulti

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