@jennifer-livingston
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Jenny Livingston started the topic WCW: Olivia in the forum Women Crush Wednesday 19 hours, 20 minutes ago
It’s Women Crush Wednesday! Today we’re honored to share a little of Olivia’s story. Olivia is 24 and from Greensville, SC. Be sure to respond to her question in the comments!
❤️ I was not diagnosed with CF at birth. I had a fairly normal young childhood, but when I was 9 years old, I caught the flu. After about a week, I was still having…[Read more]
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Jenny Livingston posted a new activity comment 19 hours, 21 minutes ago
Suzanne, hello and welcome to the forums! I’m Jenny, one of the forum moderators. Please don’t hesitate to reach out if you have any questions. We are happy to help and so glad that you’re here!
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Jenny Livingston posted a new activity comment 1 day, 20 hours ago
Hello, Steff! Welcome to the forums. I’m Jenny, one of the forum moderators. Please don’t hesitate to reach out if you ever have questions. We’re happy to help and so glad that you’re here! -
Jenny Livingston started the topic PICC Related Anxiety: A Success Story in the forum Adults With Cystic Fibrosis 2 days, 12 hours ago
These pictures were taken a year apart, almost exactly to the day. My face in the top picture is the result of yet another distressing PICC line placement, during which I had the most severe anxiety attack I’ve had to date. I’ve had some very traumatic experiences, and even though it’s not considered a “serious” procedure, it’s something I…[Read more]
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Jenny Livingston posted a new activity comment 2 days, 14 hours ago
Hello, and welcome to the forums! I’m Jenny, one of the forum moderators. Please feel free to reach out if you have any questions. We’re happy to help and so glad to have you here!
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Jenny Livingston posted a new activity comment 3 days, 21 hours ago
Hamblen, hello and welcome to the forums! I’m Jenny, one of the forum moderators. Please don’t hesitate to reach out if you have any questions. We’re happy to help and so glad that you’re here!
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Jenny Livingston posted a new activity comment 3 days, 21 hours ago
Linda, hello and welcome to the forums! I’m Jenny, one of the forum moderators. We’re happy that you’re here! Feel free to reach out if you have any questions.
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Jenny Livingston posted a new activity comment 3 days, 21 hours ago
Terri, hi! Welcome to the forums. I’m Jenny, one of the forum moderators. We’re so glad that you’re here. Please don’t hesitate to reach out if you have any questions. We are happy to help!
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Jenny Livingston started the topic Community Member Feature: Somer Love in the forum Adults With Cystic Fibrosis 1 week, 2 days ago
Some of you may already know Somer, but for those of you who don’t… you’re in for a treat! To know her is to love her (it’s literally her name!) and I’m so happy to introduce her to you here.
1) Tell us a little bit about yourself and your diagnosis story.My name is Somer Love, I am 40 years old and I try to live each day to the f… -
Jenny Livingston replied to the topic What will life look like on Trikafta? in the forum Trikafta: Triple Combination CFTR Modulator 1 week, 2 days ago
Jennifer, since originally posting this, I’ve had more conversations with friends in the CF community as well as some of my healthcare providers. The things you pointed out seem to be on everyone’s mind! Mental health is so important anyway, but these changes (even if they’re positive) will certainly bring some unique difficulties with them. I…[Read more]
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Jenny Livingston replied to the topic What will life look like on Trikafta? in the forum Trikafta: Triple Combination CFTR Modulator 1 week, 2 days ago
The data shows that this new drug is far more effective than Orkambi or Symdeko. But as we know, not everyone reacts to these (or any) drugs the same way. It’ll be so interesting to see what changes are in store for the community!
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Jenny Livingston posted a new activity comment 1 week, 2 days ago
Evona, hello and welcome to the forums!I’m Jenny, one of the forum moderators. Please feel free to reach out if you have questions or if I can help you in any way. We’re so glad that you’re here!
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Jenny Livingston posted a new activity comment 1 week, 2 days ago
LeAnn, hello and welcome to the forums. I’m Jenny, one of the forum moderators. Please don’t hesitate to reach out if you ever have questions or if I can help you in any way. We’re so glad you’re here!
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Jenny Livingston posted a new activity comment 1 week, 2 days ago
Hi, Jennifer! Welcome to the forums! We’re happy to have you here. I’m Jenny, one of the forum moderators. Please feel free to reach out if you ever have any questions.
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Jenny Livingston posted a new activity comment 1 week, 5 days ago
Rich, hello and welcome to the forums. I’m Jenny, one of the forum moderators. Please don’t hesitate to reach out if you have any questions. We’re happy to help, and so glad that you’re here!
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Jenny Livingston posted a new activity comment 1 week, 5 days ago
Hi, Amy! Welcome to the forums! I’m Jenny, one of the forum moderators. Please feel free to reach out if you ever have any questions. We’re so glad that you’re here.
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Jenny Livingston posted a new activity comment 1 week, 5 days ago
Suzanne, hello and welcome to the forums! I’m Jenny, one of the forum moderators. We’re so glad you’re here. Please don’t hesitate to reach out if you ever have any questions. We’re happy to help!
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Jenny Livingston posted a new activity comment 1 week, 5 days ago
Richard, hello and welcome to the forums! I’m Jenny, one of the forum moderators. Please feel free to reach out if you have any questions. We’re so happy that you’re here!
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Jenny Livingston started the topic Dealing with CF in public places in the forum Adults With Cystic Fibrosis 2 weeks ago
I’m traveling today and as I’ve worked my way through the airport, I’ve noticed several strange looks in my direction. From people staring at my mask, to the man who intently watched me take enzymes with a snack, to the woman sitting nearby who just gave me a horrified side-eye as I spit sputum into a tissue.
Sometimes I forget that these…[Read more]
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Jenny Livingston posted a new activity comment 2 weeks ago
Emma, hello and welcome to the forums! I’m Jenny, one of the forum moderators. Please feel free to reach out if you ever have any questions. We’re so glad that you’re here!
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