Jenny Livingston

So far, this summer has been full of activity for my family. We’ve spent time at a semi-local amusement park, enjoyed several days at the lake, had out-of-state family come to visit, and are currently getting ready to head out on a small weekend getaway. I’m so grateful that circumstance and my health have allowed all these things to hap…[Read more]

In this post, Bailey asked, “What do you wish people without CF knew about living with CF?” It can certainly be frustrating when others don’t understand certain limitations or effects of our disease, including healthcare providers at times. I want to continue the conversation Bailey started but take it a step further. What is something you wish d…[Read more]

How frequently do you see your CF team (either virtually or in person) and what is your relationship with them like? Are you able to comfortably partner with them in your care decisions? Do you feel there is mutual trust there? I’d love to hear about your CF care team experiences – good, difficult, and everything in between.

We’ve talked about the mental health side effects of Trikafta here on the forum a handful of times. I was intrigued when I saw this article pop up on my newsfeed recently (Reducing Trikafta Dose May Ease Mental Side Effects in CF Patients). It details my personal experience almost to a tee. I am so glad to know that these mental health side e…[Read more]

This article was recently shared by CF News Today and I really wanted to talk about it here. I’ve heard of “phage therapy” off and on for the last several years, but this is the first time I’ve read of it resulting in the total eradication of antibiotic-resistant lung infection. CFTR modulators have garnered so much attention in recent years (…[Read more]