It’s Women Crush Wednesday! Today we’re honored to share a little of Olivia’s story. Olivia is 24 and from Greensville, SC. Be sure to respond to her question in the comments!
❤️ I was not diagnosed with CF at birth. I had a fairly normal young childhood, but when I was 9 years old, I caught the flu. After about a week, I was still having…[Read more]
These pictures were taken a year apart, almost exactly to the day. My face in the top picture is the result of yet another distressing PICC line placement, during which I had the most severe anxiety attack I’ve had to date. I’ve had some very traumatic experiences, and even though it’s not considered a “serious” procedure, it’s something I…[Read more]
Some of you may already know Somer, but for those of you who don’t… you’re in for a treat! To know her is to love her (it’s literally her name!) and I’m so happy to introduce her to you here.
1) Tell us a little bit about yourself and your diagnosis story.
My name is Somer Love, I am 40 years old and I try to live each day to the f…
Jennifer, since originally posting this, I’ve had more conversations with friends in the CF community as well as some of my healthcare providers. The things you pointed out seem to be on everyone’s mind! Mental health is so important anyway, but these changes (even if they’re positive) will certainly bring some unique difficulties with them. I…[Read more]
The data shows that this new drug is far more effective than Orkambi or Symdeko. But as we know, not everyone reacts to these (or any) drugs the same way. It’ll be so interesting to see what changes are in store for the community!
I’m traveling today and as I’ve worked my way through the airport, I’ve noticed several strange looks in my direction. From people staring at my mask, to the man who intently watched me take enzymes with a snack, to the woman sitting nearby who just gave me a horrified side-eye as I spit sputum into a tissue.
Sometimes I forget that these…[Read more]
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