Jenny Livingston

Do you have a smaller, portable nebulizer that you use for travel? For the last couple years, I’ve been using the Part Trek S and despite mixed reviews, I’ve really liked it. However, the last couple time’s I’ve used it, the battery doesn’t even last a full treatment (where it would previously last up to 4 treatments on a single charge). It seems…[Read more]

Last week, my mother’s husband died. They were married early in the pandemic and he suffered a massive stroke just 3 months later. For the next 14 months, he was bed-ridden and she was his primary care taker. Due to his health and circumstances of the pandemic, I truly didn’t have the chance to get to know him. At his funeral, as I witnessed his…[Read more]

Shout Out to Emily’s Entourage!

@emilysentourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of CF, and since 2011 they have raised millions of dollars to fund critical research and apply an entrepreneurial approach to accelerating the development of life-saving…[Read more]

Continuing the discussion about disability and employment, I’m curious to know what accommodations (if any) you have received in the workplace. Were/are you given a flexible schedule? Were/are you able to work from home? Was the workplace environment made more accessible to you in any way? Have you ever had trouble getting the accommodations you…[Read more]

Shout Out to NHHPulmonaryRehab!

Meraki (n): To do something with soul, creativity or love; to put something of yourself into your work⠀
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Meraki is a core value that each and every person working at @nhhpulmonaryrehab holds dearly. As an evidence-based practice, NHH Pulmonary Rehab and the NHH Physiotherapists offer a continuum of car…[Read more]

October is National Disability Employment Awareness Month here in the US, and I want to spend some time here on the forum talking about different aspects of disability and employment.

I got my first job at a little fast food joint at the age of 15. In the years that followed, I worked in a few other food establishments, briefly worked for a…[Read more]

I’m thinking of getting a pill organizer for the first time in my life. Well, that’s not entirely true – I’ve used them when traveling but never at home as part of my daily routine. I find the organizing and filling process so tedious! However, my cupboard and countertop are always a mess with pill bottles and I can see the benefit of having a…[Read more]

Shout Out to Sophie Grace Holmes, Fitness Instructor with CF.⠀

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@sophiegraceholmes is a fitness coach, public speaker, influencer, ultra-endurance athlete, nutrition coach, and businesswoman. She was diagnosed with CF at four months old and told from a young age that she might not make it to 30, let alone her teens. This gave her a uni…[Read more]