Jenny Livingston

Can I admit how afraid I am of these days? She is a great (I mean GREAT) kid, but if my daughter’s pre-teen meltdowns and hormonal outbursts are any indication of what lies ahead during her teenage years… I may be in trouble. But perhaps this is Universe’s way of paying me back. My mom (who was single for most of my youth) used to say that there…[Read more]

Cindy was one of the first people with CF I “met” online. I think it was probably in 2009, and we’ve been friends ever since. I am so very proud of her accomplishments and I have always loved her writing.

Thank you, Paul. I definitely plan on keeping up with the safety measures we’ve been implementing. I’ve said these vaccines seem like the light at the end of a tunnel, but there is still a long ways to go.

Bailey, this is beautiful. I am so grateful we have each other and can help shoulder each other’s burdens. Sometimes all it takes is a simple “I’ve got you” to make the whole world seem a bit lighter.

My sister is one of these people because not only do we share a sisterly bond, she also has CF (as I’ve mentioned before). She is like a built in…[Read more]

I’ll be getting my second dose of the vaccine today! Originally, I was told I’d be getting it on February 7th, 28 days after the first shot. However, due to scheduling and supply issues, that date was changed to today (the 18th). It is still within the recommended time frame, but I was initially pretty bummed with that change. I’ve heard from many…[Read more]

I’m actually glad you chose to pick on me because this is something that’s been on my mind a ton lately! Enough so that last week, I made a video (Instagram Reel) about the subject. Unsolicited advice almost always rubs me the wrong way, but especially since it’s become so prevalent during this pandemic.

I understand that people who choose to…[Read more]

I’ve had joint pain since I was a young teen, and so often I also feel like it’s a myth! For two decades now, I’ve said things like, “I have arthritis,” or “That’s my arthritic hip.” Statements that are almost always met with giggles or “mhmm, sure”s.

My hands flare up most regularly, which makes any kind of computer work or even phone scrolling…[Read more]

Valentine’s Day (though far from my favorite holiday) stirred up some similar thoughts and reflections for me. My health has certainly impacted former relationships and was even a significant factor in the dismantling of my previous marriage.

When I met and fell in love with my now ex-husband, I was young and very healthy. I’d never experienced…[Read more]

I don’t think I’ve become more of an introvert, but perhaps I’ve realized that I quite enjoy introversion. Early in the pandemic, my partner said something along the lines of, “This will be easy for you. You love being home, away from people anyway.” I didn’t think this assessment was true — I love being around people! But it turns out, he was…[Read more]

Honestly, I’d feel the exact same way if my sense of taste were suddenly diminished! The symptoms of COVID, even those considered hallmark for the virus, are so similar to CF symptoms. It’s another aspect of this pandemic that has made the last year… shall we say, interesting?

Truth be told, I think my sense of taste is always a bit off since I…[Read more]

Shannon, first of all, I am so glad to hear that you were able to recover well. Thanks for sharing this information. I think it’s so interesting that there hasn’t been a mask mandate where you live. My state didn’t really “shut down” but there have been some restrictions imposed and mask mandates issued at different times. In my daughter’s school,…[Read more]

Bailey, I can understand your frustration and this was part of the reason I was hesitant to share the news when I got my first dose. It didn’t (and still doesn’t) seem “fair.” I didn’t it because of my own health or vulnerability. I got it because it was an “extra” dose meant for someone else who didn’t want it.

I’ve been so upset that most of…[Read more]