@edinboro
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Patti Rowland and
Jenny Livingston are now friends 2 months, 1 week ago
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Patti Rowland posted an update 2 months, 1 week ago
@timothybransford I am actually the mother of a 27 year old CFer. Nothing warms my heart more than having you say “the ramblings of a 65 year old Cfer!” When she was diagnosed at 10 I worried those were words she may not get to ever say.
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Patti Rowland and
Timothy Bransford are now friends 2 months, 1 week ago -
Patti Rowland posted an update 2 months, 1 week ago
does anyone else feel like all CF patients are just given a standard treatment plan regardless of the progress or lack thereof, of the patient?
Is everyone else kept on a daily, no break from inhaled antibiotics no matter the PFT number, weight and current health of the patient? Even when the sputum samples are clear?-
Patti, yes. This is definitely something I’ve been frustrated with in the past. However, I found that in some cases, I’ve been able to initiate a discussion about these things with my care team, leading to a change in routine or medications. I feel very lucky to have a team that is is so willing to work with me to find the best care plan for…
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Patti Rowland became a registered member 6 months, 1 week ago
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Hi, Patti! Thanks for joining us here on the forum. I’m Jenny, one of the moderators here. I’m 33 years old with CF and an 11 year old daughter who is the light of my life. I saw in your profile that you’re a mother as well! If you ever have questions or need help, please don’t hesitate to reach out to myself or my co-moderator, Bailey. We are…[Read more]
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Hey Patti, it’s so nice to meet you! My name is Bailey, and I am one of the moderators here along with my friend Jenny (whom I’m sure you’ll meet soon!) We post daily thoughts and topics to be sounding boards to or from, but are also here to support you in any other way needed. Happy scrolling, and let us know if we can help with anything
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Jenny Livingston
