Forum Replies Created

  • jono

    Member
    May 11, 2025 at 8:03 pm in reply to: What words or phrases bother you?

    A couple of things people say really annoy me: After someone hears me coughing – “Gotta stop smoking mate….” or “You need to cut down on the cigarettes” and back before self check out at the grocery store, the check out attendant looking at all my high calorie food – “Who’s having the party?” or something similar. Argh… no this is just what I need to eat to stop loosing weight!!! Sometimes I explain why I cough or why I buy the food I do. Other times I can’t be bothered.

  • jono

    Member
    March 19, 2025 at 7:27 pm in reply to: Trikafta causing Disaccharidase Deficiency?

    Cheers. Thanks again for replying William. Appreciate it!

  • jono

    Member
    March 15, 2025 at 10:49 pm in reply to: Trikafta causing Disaccharidase Deficiency?

    Thanks for the feedback. I’ve actually had a few people online suggest to me to change from Creon to another brand of enzymes. Unfortunately I’m from Australia, and I’m not sure if any other brands are available here. But I’ll bring it up with my CF team and see what they can suggest.