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sarais var

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@sarais1987

@jennifer-livingston hola jennifer …como esta .realmente estoy muy preocupada mi crisis pulmonar cada día ,y en cuba en mi provincia el covid esta fuerte ahora mismo no hay ni medicamentos para aerosol ,mi madre que vive en la florida esta haciendo hasta lo imposible para conseguir con algún familiar que tenga EPOC ella muy deprimida pues a […] View
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    sarais var replied to the topic Move your body in the forum Adults​ ​With​ ​Cystic Fibrosis 2 months, 3 weeks ago

    Hi, I know it’s a forum, but I would like to know when the Vertex company could sell such innovative medicines, such as Ivacaftor, Kaftrio, to name a few, of them we who are sick, those of us who live in Cuba, barely have creon or vitamins, my lungs every day It’s hard for her to breathe, my mother. My mother has sacrificed herself and went to…[Read more]

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    sarais var replied to the topic Comforting Home Remedies in the forum Adults​ ​With​ ​Cystic Fibrosis 5 months, 3 weeks ago

    Translated via Google translate: Hi, I’m Sarais, well, I’ll tell you that on September 10 I felt so bad that my boyfriend had to look for the DRA of cabesera, because my city Cienfuegos was full with covid 19, many people even died due to lack of oxygen because the country was seen with Great shortages, my oxygen saturation was low so much that I…[Read more]

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    sarais var and Profile picture of Patti RowlandPatti Rowland are now friends 10 months, 3 weeks ago

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    sarais var posted an update 11 months ago

    @jennifer-livingston hola jennifer …como esta .realmente estoy muy preocupada mi crisis pulmonar cada día ,y en cuba en mi provincia el covid esta fuerte ahora mismo no hay ni medicamentos para aerosol ,mi madre que vive en la florida esta haciendo hasta lo imposible para conseguir con algún familiar que tenga EPOC ella muy deprimida pues a v…[Read more]

    • Profile picture of Jenny Livingston
      Jenny Livingston replied 11 months ago
      I do not speak Spanish, but used Google translate to read your message. I am so sorry to hear of your circumstances. I know that many people in other countries lack even basic CF care and do not have access to specialty medications. As a global community, we have a long way to go. I am sending love to you and hope that things start looking up.
    • Profile picture of sarais var

      sarais var's profile was updated 11 months ago

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      sarais var became a registered member 12 months ago

      • Profile picture of Jenny Livingston
        Jenny Livingston replied 12 months ago

        Sarais, welcome to the forum. I’m Jenny, one of the forum moderators. Please reach out if you need help or have any specific questions. Thanks for joining us here. I look forward to getting to know you more!

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