@sarais1987
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sarais var and
Luisa Palazola are now friends 8 months, 2 weeks ago -
sarais var replied to the topic Move your body in the forum Adults With Cystic Fibrosis 11 months, 4 weeks ago
Hi, I know it’s a forum, but I would like to know when the Vertex company could sell such innovative medicines, such as Ivacaftor, Kaftrio, to name a few, of them we who are sick, those of us who live in Cuba, barely have creon or vitamins, my lungs every day It’s hard for her to breathe, my mother. My mother has sacrificed herself and went to…[Read more]
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sarais var replied to the topic Comforting Home Remedies in the forum Adults With Cystic Fibrosis 1 year, 2 months ago
Translated via Google translate: Hi, I’m Sarais, well, I’ll tell you that on September 10 I felt so bad that my boyfriend had to look for the DRA of cabesera, because my city Cienfuegos was full with covid 19, many people even died due to lack of oxygen because the country was seen with Great shortages, my oxygen saturation was low so much that I…[Read more]
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sarais var and
Patti Rowland are now friends 1 year, 7 months ago
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sarais var and
Nicole Kohr are now friends 1 year, 7 months ago
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sarais var and
John F Schroeder are now friends 1 year, 7 months ago
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sarais var and
Robert Lane are now friends 1 year, 7 months ago
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sarais var and
Timothy Bransford are now friends 1 year, 7 months ago -
sarais var and
Steff are now friends 1 year, 7 months ago -
sarais var and
Michele are now friends 1 year, 7 months ago
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sarais var and
Paul met Debbie are now friends 1 year, 7 months ago -
sarais var and
Ronald Cubalchini are now friends 1 year, 7 months ago
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sarais var and
Becky Fox are now friends 1 year, 7 months ago -
sarais var posted an update 1 year, 8 months ago
@jennifer-livingston hola jennifer …como esta .realmente estoy muy preocupada mi crisis pulmonar cada día ,y en cuba en mi provincia el covid esta fuerte ahora mismo no hay ni medicamentos para aerosol ,mi madre que vive en la florida esta haciendo hasta lo imposible para conseguir con algún familiar que tenga EPOC ella muy deprimida pues a v…[Read more]
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I do not speak Spanish, but used Google translate to read your message. I am so sorry to hear of your circumstances. I know that many people in other countries lack even basic CF care and do not have access to specialty medications. As a global community, we have a long way to go. I am sending love to you and hope that things start looking up.
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sarais var's profile was updated 1 year, 8 months ago
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sarais var became a registered member 1 year, 9 months ago
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Sarais, welcome to the forum. I’m Jenny, one of the forum moderators. Please reach out if you need help or have any specific questions. Thanks for joining us here. I look forward to getting to know you more!
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