Yes I agree with you fully Luisa, kindness and respect are important.
But we should always realize that it becomes much easier to relate to other people if we in the first place know who we really are. Then we can make contact on a different level that is not dependent on formalities like language. To feel (dis)respect(ed) in the end is just a…[Read more]
I think there is too much emphasis on the subject to start with.
Why would anyone want to be identified with a bodily function-disorder like that? Why would you want to be adressed at all in that way? And if you do, why do you care about the specific terms used in that process?
If you really care about being referred to as cf-er, cf patient,…[Read more]
Well, let’s lift this beyond the cf world. How do you react when someone you know (a fellow human being) dies before you do? Should you be feeling guilty? Why? Is this any different from a fellow cf patiënt dying? Really?
In my opinion, this has nothing to do with cf at all. To parafrase a well known latin proverb: “hodie tibi, cras mihi”. Guilt…[Read more]
LOL, I had to look up the term PFT to find out that it means lungfunction test.
Anyway, I did those in the past until I found out that the only thing they do with it, is file it. I have never seen any medical action (treatment, diagnosis, medication) to result from (only) a PFT. It just shows a gradual decline in longfunction over time, something…[Read more]
I wish they would not (mis) use animals testing and developing medication.
It is all a matter of your own perception. It is good that Elisabeth talks of pity on the one hand, and compassion on the other. They are completely different. You can accept compassion with grace, and you can ignore pity.
But the main thing is to be relaxed about your own situation, then you won’t mind (or even notice) the reaction of others to…[Read more]
Keep up the good work and positive attitude!
Don’t look forward to the future too much though, stay in the now and if travelling is what you want, don’t postpone.
About your question: it is not advisible to try and improve the hand you ar dealt, it is not possible and not necessary. There is nothing wrong with it. Just accept what is…[Read more]
Your body does not betray you in de the morning, you have betrayed your body the evening before by pulling a late night. Just accept the boundaries your body sets, it knows better than you. There is no problem in that, so no compensation or strategy is needed other than being aware of your bodily needs.
Well, it would be impossible to exist without attachments. Because that would be an attachment itself (“now I am going to live without attachments” – good luck with that).
So, I would have to answer to your question: it is kinda like living. Just be. Don’t think your life, live it. No conceptualising. Naturally, there will be no specific…[Read more]
Who makes up questions like these? They are not true. Don’t make up identities like this. How to answer such a question?
You can’t come to terms with it, because it doesnot exist.
Everyone has a life-long illness which is called living. It has a bad perspective, uncurable. Your body will die from it some day. But that’s no problem, it’s supposed…[Read more]
Well, the best recipe would be not to take yourself so seriously.
Try to remove as much identity of yourself (and of your so called health condition) as possible. With the removal of that, also your problems disappear.
Look for the being that is present under the person. Discover that it has no problems at all, no wounds to heal. Miracle-cure. Of…[Read more]
Well, same as with the unpredictability of life in general. Is there anything predictable? Tell me about it, I am curious. Don’t panic, nothing is under control.
We can’t even predict something simple like the weather more than 3 days with reasonable accuracy. So, as long as you don’t expect or attach to predictability, you are in the clear.…[Read more]
Yes, I have a bottle at hand and in the car. And in the guest bathroom there is another one. Especially when I have to visit the doctor/hospital it’s important (bad bugs there). But also in shops etc, doorknobs, pay-machines, pincode readers, elevator knobs, you name it. Public toilets not to mention.
And I wash my hands frequently too.
Sure it…[Read more]
Yes I was aware of these.
Well, just be as clean as you can and for the rest: trust your immunesystem. I don’t eat meat (bad bacteria, and traces of antibiotic can make me less sensitive for antibiotic treatment). I wash my hands regularly (often wear gloves, it’s becoming fashionable again) and stay away from large groups of people, certainly…[Read more]
When I was young, I thought this was a problem. Not many people knew about cf, so that made it harder I thought.
So I just didn’t tell. I also felt it was part of my privacy. So, if people asked about my coughing, I simply said I had a cold. Or that I had chronic bronchitis. Or even astma. Astonishing how easy peoples curiosity is satisfied. If…[Read more]
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