julie-martin
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Do you have a CF center near you? Check out the cystic fibrosis foundation to help you locate one. There is such great treatment and care available for CF now! I’m 54 and my care is at the University of Washington. Good luck! I’m healthy and hope your baby will be too. Ask questions of me anytime-would love to be a resource. Julie
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I allow myself to sleep a lot when my energy is low. I really notice my eating habits at those times and have to force myself to take in nutrition. It usually takes a couple of days for those calories to kick in, but I do usually see an improvement in my energy levels. Eat 🙂
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I am so thankful for home health and its options. I am on home IVs about 5 times per year, 3-4 weeks per episode, 2 drugs, each every 8 hours. My husband is a huge help and does my morning doses for me (hooking up, etc) while I try to sleep. Managing the schedule is often rough because one can feel pretty tied down, but being at home surrounded by own routines is worth it. Good luck!