Forum Replies Created

  • kerry

    Member
    October 20, 2022 at 5:25 pm in reply to: When did you first meet another person with CF?

    I have 3 children and 2 of them with Cystic Fibrosis. I first met someone with CF when my eldest was diagnosed with CF at 15 months old. We became great friends with the whole family and spend many weekends at their house and them at ours. Even giving their son (now passed away) only months before he died, his wish to go camping, riding motorbikes, pig hunting and fishing. He was like my kids big brother. (10 years difference)!!! He had all sorts of serious bad bacterias that never passed across to my girls with CF and my girls are still living today. We used to mingle those days. Now they cannot mingle. Not sure of the 6 feet apart rule is for the betterment of the mental well-being for the CF’s t not be able to  talk in person and help each other through.