Log In or Register to Join The Conversation!
  • Becky Fox changed their profile picture 4 weeks ago

  • Becky Fox changed their profile picture 4 weeks ago

  • Becky Fox changed their profile picture 4 weeks ago

  • Becky Fox posted an update 4 weeks ago

    Thanks for clearing that up for me Bailey. I kinda thought you were the dark haired one, but you look so young. I looked for a camera icon, but , honestly I don’t see one anywhere on here. Maybe I’m not given that option. Hope you and your family are well. Becky

    • Becky, it may be that you need to post a new topic in order to include a photo, instead of trying to include one in this comment thread. I can see that you changed your profile picture (so nice to put a face to the name) but I believe if you want to post more pictures, you’d need to start a new topic — which you are always welcome to do! I hope…[Read more]

  • Becky Fox posted an update 1 month ago

    Hi Bailey, you posted a few pictures in your column about being a parent. I’m a little confused. I know you aren’t the smallest girl in the photos, I am curious as to which one of the bigger girls you are. BTW how can I post pictures?

    • Hey Becky! So yes ma’am, I am. I am the middle-sized one in the photos (is middle-sized a thing? lol). My 14 year old is the very tall one (she’s about 5’10”!) and my 11 year old is the smaller one. I’m about 5’4″, but my recent back issue is definitely messing with my ballet posture. My daughter said, “Mom, are you shrinking?” So… I can’t…

      [Read more]

  • Baile, thanks for the info. I never would have thought that the liver can be effected by CF. Proves once more that CF is a full body condition (I prefer to call it a condition as opposed to a disease). Seems you have experienced quite a number of CF related issues. I truly admire your stamina and positive attitude. My interactions with other…[Read more]

  • Paul, yes, she knows. I tell her every time I discuss anything about her. I am her mom after all, and we have an extremely close relationship. You have no need to worry. I would never compromise my daughter’s integrity or her private life, ever. I completely understand confidentiality issues as I worked in a government program for 26 years that…[Read more]

  • Well Bailey, for a 74 year old woman I’m doing quite well. Thanks for asking. 😊 I have to tell you all about Kelly’s fiance’s nephew. I’m not sure what his name is, but a couple years ago (approximately) he was diagnosed with CF at the age of either 13 or 14. His mom, who grew up with Kelly and my youngest daughte, says his CF is affecting his…[Read more]

    • Hey Becky, so in short: yes! My liver is impacted, personally, and I have a lovely close friend who just had a liver transplant due to her CF. Here is a news piece that was done on her recently by a journalist friend of mine… It’s really worth the watch! I am currently on liver meds for mine, and we watch it closely- but it really only bugs me…[Read more]

  • Hi all,
    I had dinner with Kelly a few days ago, and asked her about her Creon intake. She said she hasn’t been taking fewer capsules (is it in capsules?) since starting Trikafta (takes 5 with meals). Also she drew a blank when I asked her about her electrolytes. She said she has never been informed about them. She also said she hasn’t had any gut…[Read more]

    • Thank you so much Becky! That is really encouraging about Kelly and her stomach pain (and yes, I guess we call Creon capsules, right? Although I’ll admit- I sometimes still break them open and swallow the contents quickly that way, which is an old habit from a former stomach surgery when they were hard to swallow! lol) How have you been…[Read more]

  • Jenny, To my knowledge, I don’t believe Kelly has had any complications at all since she started Trikafta. It seems that she told me once that she has reduced the number of Creon capsules, but I can’t remember for sure.

    Tim, to tell you the truth I have no idea if there have been any changes in her electrolytes (I doubt if Kelly even knows).…[Read more]

  • Hi Bailey, hi Jenny,
    Becky Fox here again. I will take a chance in speaking for Kelly by saying that half of the few times she has been hospitalized throughout her life has been due to gastrointestinal complications. The other times were needed “clean-outs”. So I guess the time has been equally divided. The differences, pain wise, centered on her…[Read more]

    • Becky, this is so amazing!!! Thanks for sharing a bit about her history (it’s actually reassuring to me in a kindred-spirits sort of way that she also had some GI muckery, as we can relate to one another). I’m curious as her Momma… Are you often able to be there with her during past hospital visits, or do you have to support from afar? I know…[Read more]

  • Hi Jenny and Bailey,
    I’m happy to share Kelly with you both. Yes, I am way beyond proud of Kelly. Although she hasn’t had the major problems you gals have had with CF, since she has gotten older, her condition was starting to get gradually worse. Starting Trikafta has made a tremendous difference in her life. It was truly an answer to many…[Read more]

  • My daughter, Kelly started Trikafta January 22, 2020, one week before her fortieth birthday. I was fortunate enough to be able to accompany her on this momentous day. The very next day she reported that when she walked up the stairs at work, she didn’t experience shortness of breath; this after only two doses of Trikafta. And it just got better…[Read more]

  • My daughter, Kelly started Trikafta January 22, 2020, one week before her fortieth birthday. I was fortunate enough to be able to accompany her on this momentous day. The very next day she reported that when she walked up the stairs at work, she didn’t experience shortness of breath; this after only two doses of Trikafta. And it just got better…[Read more]

    • Wow, this so refreshing and encouraging to hear. Do you mind if I ask what profession she is in, just out of curiosity? I love seeing what different walks of life we travel. I can’t even imagine how proud of her you must be!

  • Becky Fox became a registered member 3 months, 4 weeks ago

Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account