- Year of Birth
- Short Bio
I am the parent of an adult female who was diagnosed with CF at the age of five months old. She celebrated her fortieth birthday on January 29th of 2020, and started Trikafta one week exactly before her birthday on January 22, 2020. She is doing amazingly well since starting Trikafta. I am no longer her caretaker, as she independently with her fiance. I am still very much involved in her life and have spent her hospitalizations at side day and night. I wrote a book many years ago about my daughter and how CF affected her, myself and the rest of the family. It has never been published, however, I am still interested in that possibility.
- How did you hear about us?
- How long have you or the person that you are caring for had CF?