[sherri]

Hi,

I found this forum and so grateful I did.

Going to try and make this story brief. My husband was diagnosed with CF in 2012. He pretty much coughed most of his life. Finally diagnosed after much persuasion of pushing him and the doctors.

He started Trikafta in July 2021. He is and never has been on anything for CF.  Trikafta made a world of difference and helped him tremendously. In November, my husband turned 65 which he had to sign up for Medicare. With that being said, the copay assistance prior to 65 was no longer an option. Because of the Medicare part D coverage, my husband would have had to pay back to back donut hole/catastrophic amount for his Trikafta. (Annually once your reach this amount, then your coverage kicks in) So, my husband has been dosing his Trikafta differently to get him through until January 1. Unfortunately, he is having really bad GI issues which has caused horrific hemorrhoids. These GI issues happen all day but worse shortly after he eats. We had appointment with the CF doctor a week ago. She wants him to have his pancreatic sufficiency checked by GI. It just makes me wonder if this alteration in the dosing could be the issue. He has never experienced this before. You all have much more knowledge than I do and would love to hear your thoughts.
Thank you so much.