Base

I’m an outgoing, active, passionate, hard-headed, sometimes outspoken, never quit (there is no try, only do…)  47 year old CF patient. I was diagnosed when I was 3 years old in ’76 when my baby brother (at the time) was diagnosed at less than a year old. In ’77 my sister came long, she was also diagnosed with CF.

My sister and I are in the 10 percentile gene mutation where Trikafta will not treat nor help us.  I say help my sister and I as sadly this past July my brother passed away at 42 from complications that arose from his lung transplant only a couple months prior.  Life is great, but has many strange, trying and often complicated twists at times…