[travissuit]

Hey beautiful humans!  My name is Travis Suit and I was diagnosed with CF last November at 37 years old.  I’ve had minor symptoms throughout my life, such as digestion issues and mild mucous production. It wasn’t until my oldest half-sister from my Dad’s first marriage, LeeAnn, was diagnosed, that our family realized CF existed.

After my sister LeeAnn’s diagnosis at 40, my 4 year old daughter was diagnosed one year later.  Then, my other sister Nikki, was diagnosed during her pregnancy.  Nikki and I have the same two CF genes D508 and S1235R, my daughter Piper has Double D508, and my sister LeeAnn has D508 and D1152H.

It has been a strange and life transformative journey over the last decade learning about all the vast and variant expressions of this disease, and what that means to a family.  It’s crazy to think about how many people could be living with CF and have no clue, and they are either being misdiagnosed or undiagnosed.

Thank you for this forum topic. It’s nice to share and read others’ stories.  Sending my love and gratitude, Travis.

P.S. – We recorded an interview about our family’s journey with CF here: https://youtu.be/pLIFySheCQo