Deanna York
Forum Replies Created
-
Hello. I‘m Deanna. Has anyone ever cultivated Maxorella? Gram negative bug. I also cultured several years ago Bordatella Bronchoseptica. Both were nasty. The Bordetella I got from a sick puppy. Had to be hospitalized twice. It took iv fluids PICC line at home for several weeks. Unusual but I cultured these weird things. The Moraxella was recently in December. Augmentin that caused severe diarrhea. I’m on Trikafta the past three months. 2 a day , not 3. And I’m 76. Diagnosed in 2007.
Trouble all my life but didn’t know I had cf. Deltaf508 and a lesser known mutation. Deanna -
My biggest shock was to have the diagnosis at all. I was dx in 2007. 2 mutations, one deltaf508. I turned 76 yesterday. And…I will start on Trikafta November 22, 2022!! I will be shocked if I am without thick mucus, continuous sinus drainage, belly aches, etc. All due to CF. I WILL BE GRATEFUL to be rid of all that mucus. My quality of life will be hugely better. And I won’t drive other people nuts clearing my throat and sniffing and coughing!! I had someone tell me at one of my high school reunions that she didn’t like to sit near me because of all that noise. I had no idea and surely didn’t know I had CF mutations. It all made sense when I found out I had 2 mutations. I’m planning on Trikafta working. Deanna
-
I was diagnosed in 2007. I’ll be 76 this month. What prompted me to get the Ambry blood test was that I developed NTM. Also grew fungus in my lungs. Had lots of sinus and chest infections. And trouble with digestive issues, especially constipations. 2 fecal impactions. I can remember my grandmother giving me laxatives and ear infections and pneumonias. The Ambry showed 2 mutations. One was deltaf508.