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Timothy Bransford

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@timothybransford

Homage to Jaxx Zara spends Mondays at our house. Sandi takes this day off from her clay studio to watch our 4-year old granddaughter. Since I work from home, each Monday morning “Z” makes a beeline to my office with the daily download of news. Today, she brings me a little artwork. It is a card with 4-year old drawings and etchings and cut […] View
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  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Hemopytsis, hormones, and life in the forum Adults​ ​With​ ​Cystic Fibrosis 1 week, 5 days ago

    Luisa.  You sound like a younger me because, if not for hemoptysis, I would hardly know I have cystic fibrosis.  Do I have PTSD as a result of the many episode of hemoptysis I’ve experienced over the years?  Probably, yes.

    I do my best to prevent CF from dominating my world.  It mostly hovers like a malevolent shadow, a lingering cloud in my sun…[Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Patients denied transplantation because not covid vaccinated in the forum Coronavirus (COVID-19) and CF 4 months, 3 weeks ago

    As I see it, this entire discussion reduces down to personal responsibility for the choices we make.  If you fear a vaccine more than you fear being rejected for organ transplant that is your choice.  And the consequences of your choice are your responsibility.  The shortage of organs from doners when compared to the demand by dying people ma…[Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Biopic of Your Life: Who Would YOU Be? in the forum Adults​ ​With​ ​Cystic Fibrosis 10 months, 2 weeks ago

    Peter Sellers as “Chance the Gardener” directed by Hal Ashby.

     

    CF would not be the central part of my story.  It is not the reveal.  The reveal is how fickle life can be and how tied we are to random encounters with time and place and other people.  These encounters can make us soar or they can make us crash regardless of how we try to co…[Read more]

  • Profile picture of sarais var

    sarais var and Profile picture of Timothy BransfordTimothy Bransford are now friends 10 months, 4 weeks ago

  • Profile picture of Timothy Bransford

    Timothy Bransford posted an update 1 year ago

    Homage to Jaxx

    Zara spends Mondays at our house. Sandi takes this day off from her clay studio to watch our 4-year old granddaughter. Since I work from home, each Monday morning “Z” makes a beeline to my office with the daily download of news. Today, she brings me a little artwork. It is a card with 4-year old drawings and etchings and cut…[Read more]

    • Profile picture of Jenny Livingston
      Jenny Livingston replied 1 year ago
      I’m sorry to hear of this loss. It sounds like Jaxx was a great companion. Your description of letting Jaxx go vs the “soldier things” you’ve seen and done really pulled at my heartstrings. I’m glad you didn’t remain steely; what a tribute to Jaxx and way to honor your own heart in this grief. Sending love to you all (including Marvin and…

      [Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Medical gaslighting in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year ago

    As much as I respect the medical profession, I do not worship at its feet.  Like most CF patients, I do my best to know my disease and how it impacts my health.  I advocate for myself.  If a doctor is unable to handle my micro-management then I find a new doctor.  Fortunately,  I live in Seattle and we have a major CF clinic at the University of W…[Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic CF carrier symptoms? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year ago

    CF is such a broad spectrum.  I believe it has a massive footprint that that is still relatively unknown.  I’m lucky, it mostly impacts my lungs.  I seem relatively OK with the rest of my organs.  In fact, I’m pretty much a healthy person outside the FEV issue.

     

    I come from a large family.  I have 6 siblings and I am the only child with kno…[Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Life after vaccine… what are your thoughts? in the forum Coronavirus (COVID-19) and CF 1 year, 1 month ago

    The looks I used to get during my CF clinic visits when I wore my N95 mask.  The freight I used to sense from the general public when I wore that mask outside the clinic.

     

    Post-covid it’s a different story.

     

    I’m comfortable with social distancing and mask wearing.  I’ve practiced this as much as possible for many years.  Covid just legitimi…[Read more]

    • Profile picture of Bailey Vincent
      Bailey Vincent replied 1 year, 1 month ago

      I could not be more appreciative of your words and your perspective, thank you. You said “You are what you choose” and that really struck me, as did the approach of thinking ‘What can I control? Myself’ and focusing on that instead of the selfishness or upset around us (depending on your beliefs about the current crisis, of course). Thank you…[Read more]

  • Profile picture of Patti Rowland

    Patti Rowland and Profile picture of Timothy BransfordTimothy Bransford are now friends 1 year, 1 month ago

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic I Am Sitting at a Coffee Shop…. in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 1 month ago

    I know the dilemma. Just title this little ditty “Achilles meets Icarus”.

    My way of coping with the realities of CF in the workplace 26 years ago was to start my own business with the aim to create a more user-friendly work environment. I determined to be overt with all aspects of CF. As I hired employees, part of my interview process was…[Read more]

    • Profile picture of Bailey Vincent
      Bailey Vincent replied 1 year, 1 month ago

      Thank you, as usual, for these words, and the time it takes to write them. I truly look forward to each Sunday-share

      I love this quote so much: “By abandoning the race to the top, I was able to enjoy the priorities of my life. One of the best decisions I’ve made.”

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic “Courage Animals”: Which Are Yours? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 2 months ago

    Thank you for your kind commments.

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Sunday Morning (8) in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 2 months ago

    This morning, like every morning, I was awakened by the stiletto paws of our cat Jaxx. He is a big boy, so when he stands on my stomach and speaks with his “feed me Seymour” meow, he cannot be ignored. Next to Jaxx is his sidekick, Marvin. Marv is also a big boy. However, his morning technique is to wail like a banshee while gently tou…[Read more]

    • Profile picture of Bailey Vincent
      Bailey Vincent replied 1 year, 2 months ago

      This makes me so happy to read and imagine. I have two cats too – who aren’t very big- but I love big cats and hope to have one day. It feels like living with a tiger when around a bigger cat… We remember why they were originally wild beasts!

      How did you find both of them? What’s their “gotcha day” story?

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic “Courage Animals”: Which Are Yours? in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 2 months ago

    Spirit animals are integral to my personal view of the world. Many people may write this off as fantastical and, possibly, delusional thinking. And they might be right. But, for me, the natural world and the spiritual world have merged into one world since childhood.
    I believe that I do not have a specific spirit animal. However, I know that I…[Read more]

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic Face Off: “Water, Fire, Air and Earth” in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 2 months ago

    Snow and mountains, or sand and sun… Fact is, I must have it all.

    I spent my childhood on a small island in SE Alaska on the edge of The Misty Fjords. Pacific Ocean on one side, mountains rising in the back yard. Salmon, eagle, bear, raven, deer, ptarmigan, ancient cedars, towering sitka spruce, moss, muskeg…this was my playground. However,…[Read more]

    • Profile picture of Bailey Vincent
      Bailey Vincent replied 1 year, 2 months ago

      This. Is. Fascinating.

      As usual, I wish you could write a book about your life. Thank you for every word! I honestly felt transported

  • Profile picture of Timothy Bransford

    Timothy Bransford replied to the topic When Life Feels Out of Control…. in the forum Adults​ ​With​ ​Cystic Fibrosis 1 year, 3 months ago

    Pre-CF diagnosis, I always believed that I alone controlled my destiny. Fate was just the consequence of my choices. This belief allowed me to function in high stress envronments and, for the most part, it held true. I also believed that a nuclear bomb could go off and I would emerge, shiney and new, from the dust cloud. Alive and well.…[Read more]

    • Profile picture of Bailey Vincent
      Bailey Vincent replied 1 year, 3 months ago

      Timothy, thank you. Thank you so much for this. I have so many more questions about your mysterious life (Sudan?) and look forward to knowing you more. For now, I am truly savoring your sentance: “I have lived since with a simple mantra to do my best and rest in the result.”

  • Profile picture of Timothy Bransford

    Timothy Bransford changed their profile picture 1 year, 3 months ago

  • Profile picture of Timothy Bransford

    Timothy Bransford became a registered member 1 year, 3 months ago

    • Profile picture of Jenny Livingston
      Jenny Livingston replied 1 year, 3 months ago

      Timothy, hello and welcome to the forum! I’m Jenny, one of the moderators here. I want to thank you, sincerely, for the story you shared in your profile. Wow! As someone who was diagnosed at birth and also has 2 older sisters with CF, the subject was never NOT spoken of. I’m always fascinated by stories of late diagnosis and those who choose not…[Read more]

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