Forum Replies Created

  • janee

    Member
    January 10, 2023 at 4:35 pm in reply to: Does getting older scare or delight you?

    Thanks Jenny. I do try to be positive as much as possible, like everyI have off days but so far have managed to find the positives in life. I’ll be happy to update you with my 60 experiences. Thank you for reading

     

  • janee

    Member
    January 3, 2023 at 10:22 am in reply to: Does getting older scare or delight you?

    It’s certainly better than the only other option! I will hit 60 in October this year and have decided I will be doing 60 new things throughout the year to celebrate! They may only be small events; new food, new restaurants (food figures high on my radar) or venturing to new places.

    I thought 50 would be my last decade but am so happy to say I was wrong, in the main due to Kaftrio. I encountered a neurological problem in 2015 and had to learn to write, walk, drive and even walk again. It’s the only time I didn’t get snide looks for using my blue badge! I now work part time as I found not working at all to not be conducive to my own good mental health. It was a nightmare and as I was treated at a different hospital to my CF made me appreciate the team all over again.

    When I was much, much younger I heard a Dr describe me as like a car engine without oil, how wrong was he….. I am now most comfortable in my old skin, and would tell the 5 year old with dark teeth (antibiotic staining), that was always picked on that life would be good, always hard work but I would have the last laugh. Never give up.

  • janee

    Member
    November 18, 2021 at 12:15 pm in reply to: Has Trikafta improved GI symptoms for you?

    I haven’t noticed much difference with my stomach other than it’s now incredibly noisy! I don’t mean in the wind department, it just seems to gurgle so much more. My bowels are incredibly sluggish and I take movicol, prucalopride and docusate with the occasional cocktail of gastrograffin