Patrícia Silva, PhD,  director of science content—

After waiting for a year, Carrie Giddens has received a much needed lung transplantation. Carrie, who is married to Craig Giddens, suffers from cystic fibrosis (CF) and, like many other CF patients, a lung transplant was her only option. Now, Craig has decided to write a letter to the…

The Boomer Esiason Foundation (BEF) and Johnson & Johnson recently announced the launch of the Johnson & Johnson TRU Heroes Cystic Fibrosis Nursing Program, a first-of-its-kind educational empowerment program for the nursing community focused on cystic fibrosis (CF). The Johnson & Johnson TRU Heroes program was designed to…

Walgreens is launching CF Champions: Navigating the Journey, Together, a program to support patients, caregivers and all who have been touched by cystic fibrosis (CF). The initiative runs throughout May, the Cystic Fibrosis Foundation’s National CF Awareness Month, and possibly through the end of this year. Walgreens partnered with four CF…

Cystic Fibrosis Foundation leaders and cystic fibrosis (CF) community advocates met at the White House with President Barack Obama, officials from the National Institutes of Health (NIH) and the U.S. Food and Drug Administration (FDA), and other CF stakeholders last month for the Precision Medicine Initiative (PMI) Summit. The summit was an opportunity…

The Cystic Fibrosis Foundation (CF Foundation) honored professionals in the Charlotte, North Carolina, area for their business, community leadership, and philanthropy work at its Sixth Annual STANDOUT Awards banquet, with proceeds from the 2015 event going to further the Foundation’s research, care, and educational programs for cystic fibrosis (CF). A banquet highlight was the…

Better ways of treating chronic lung infections in patients with cystic fibrosis (CF) are likely to result from scientific advances in the understanding of how Pseudomonas aeruginosa bacteria evolve and adapt during infections, according to a recently published review from the University of Liverpool, working in collaboration with the University of York. The review appeared in…

Vertex Pharmaceuticals, Inc.  recently announced that 18 nonprofit groups were chosen to receive Cystic Fibrosis (CF) Circle of Care grants for 2016, totaling nearly $1 million. The award, now in its second year, is given to medical, academic, patient, and community organizations aiding the cystic fibrosis (CF) community. Despite recent…

Many people make a bucket list, a wish list of “musts” to see and do before they die. But how many are tucked away in a drawer, and left forgotten? Meet Sandi Alvaro, a young West Virginian who has lived with cystic fibrosis (CF) her entire life and is out…

Nivalis Therapeutics, Inc., recently announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track designation to its lead investigational drug, N91115, a stabilizer of the cystic fibrosis transmembrane conductance regulator (CFTR) protein, as a potential treatment for patients with cystic fibrosis (CF). The drug is now being evaluated in…

Galapagos NV announced the start of its SAPHIRA Phase 2 exploratory study with the first dosing of GLPG1837 in a cystic fibrosis (CF) patient. Topline results are expected in late 2016. CF is triggered by a mutation in the gene for the cystic fibrosis transmembrane conductance regulator (CFTR) protein, resulting in abnormal…