Finding my purpose in this empty nest after my lung transplant

The Merriam-Webster Dictionary defines identity as “the distinguishing character or personality of an individual.” Having a genetic, progressive, and life-shortening disease such as cystic fibrosis (CF) can consume a large part of a person’s physical, mental, and emotional state. It can feel that the disease becomes your identity.

How personifying cystic fibrosis made me a monster slayer

Mom raised me to be a hungry reader, so it wasn’t long until I explored one of her favorite genres, Southern Gothic. Tales from this corner of the library are identified by distorted realities, eerie supernaturalism, eccentric characters, and sometimes abrupt violence. These elements are often bound together to critique…

In this CF life, I won’t give up trying

When I was in my late teens and early 20s, before I met my wife, I would go anywhere and do anything at a moment’s notice. Staying out until 3 a.m. at a random bar on Manhattan’s Lower East Side? No problem. Watching a friend’s band play in a basement…