Claire’s Place Foundation, a nonprofit supporting children and families affected by cystic fibrosis (CF), has launched a CF Ambassador & Advisory program — and is now seeking to grow the new initiative. By involving advocates and people living with CF in the foundation’s mission, and amplifying patient voices…
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I think the “if you just” culture is hurting sick people. Have you heard sentences that start with “if you just”? They often end by oversimplifying an issue that’s likely not that simple. I’m sick of oversimplifying health. The “if you just” culture is a bit like when someone…
After one year of treatment with Kaftrio, a triple combination of elexacaftor, tezacaftor, and ivacaftor marketed as Trikafta in the U.S., the number of harmful bacteria growing in the lungs of people with cystic fibrosis (CF) declined significantly, a French study reports. “We observed a significant decrease in…
A Phase 1b trial assessing the safety of RCT2100, Recode Therapeutics’ inhaled therapy candidate for people with cystic fibrosis (CF), has now dosed its first patient in the U.S. The trial already was underway in Europe. RCT2100 is being developed for patients who do not respond to or…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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