Treatment with Kaftrio may reduce the need for salt supplementation to treat salt wasting, the excessive loss of sodium and chloride in sweat that occurs in people with cystic fibrosis (CF), a new study reports. Kaftrio (elexacaftor/tezacaftor/ivacaftor), sold as Trikafta in the U.S., restored electrolyte (salt) balance, as indicated…

While the results of a recent study investigating how financial stress affects the cystic fibrosis (CF) community are alarming, they’re not surprising. I think it’s a perfect example of why this issue needs to be taken more seriously. For the study, published last month in the Journal…

Adults with cystic fibrosis (CF) who are better at coping with their thoughts and feelings also achieve greater well-being, with mindfulness — especially acting with awareness — partially explaining this link to better mental health, a new U.K. study found. According to the researchers, the results suggest that interventions…

Because of my cystic fibrosis (CF) and double-lung transplant, I receive Social Security Disability Insurance (SSDI). When I got my statement last month, my stomach dropped. With the cost-of-living adjustment, my monthly benefit had increased slightly. Sounds like good news, right? However, that increase pushed me just over…

“I’m freaking out — have you ever had a burst blood vessel in your eyeball?” This is a recent text message I sent to a dear friend. We’re not only friends; we both live with cystic fibrosis (CF) and have had a double-lung transplant. She gets me on…

Eight years ago, I walked down the corridor that connected the hospital to the clinical research wing. I arrived at what felt a bit like a movie set, but was actually the floor where clinical trial participants would receive intravenous infusions of either a placebo or the investigational drug. It…