The other morning, I was startled awake by the sound of my insulin pump screaming for me to change a part of my infusion set. That happens regularly with my Omnipod system, which I use to provide insulin for my cystic fibrosis-related diabetes. Omnipod sets off an alarm…
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Infants with cystic fibrosis (CF) have alterations to the nasal microbiome — the community of microbes that live in the nose — in the first year of life, a new study has discovered. These alterations, seen in newborns with CF but not in infants without the genetic disease, may…
It has been a year. From an underwhelming season of “Vanderpump Rules” to a historic rap battle, the world has navigated a roller coaster of emotions and events. The highs of me being a huge Kendrick Lamar fan were matched by the lows of simply opening a news website or…
Treatment with Trikafta may help ease severe symptoms of anxiety and depression in children with cystic fibrosis (CF), a study in the U.S. suggests. The study, “Mental Health of Pediatric Patients with Cystic Fibrosis after 18 Months on Elexacaftor-Tezacaftor-Ivacaftor Therapy,” was published in Pediatric Pulmonology. The study’s researchers…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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