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May 3, 2021May 3, 2021

CF Awareness Month Packed With Events, Online and Outdoors

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Throughout May, Cystic Fibrosis (CF) Awareness Month, people will connect to share stories on social media, participate in fundraising events across the U.S., and help bring greater public understanding of ... Read more

April 30, 2021April 30, 2021

CF Patients Cite Barriers to Physical Activity

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People with cystic fibrosis (CF) experience many barriers that limit their participation in physical activity, ranging from a lack of energy to low motivation to self-consciousness, a recent study highlights. ... Read more

April 29, 2021April 29, 2021

Kaftrio Opens to All CF Patients, 12 and Up, in EU With F508del Mutation

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The European Commission (EC) agreed to expand use of Vertex’s Kaftrio (ivacaftor/tezacaftor/elexacaftor), in combination with Kalydeco (ivacaftor), to include cystic fibrosis (CF) patients 12 and older who have at least one copy ... Read more

April 28, 2021April 28, 2021

PDE4 Inhibitors May Help Treat CF, Dry Mouth

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Blocking an enzyme called phosphodiesterase-4 (PDE4) may be useful in the treatment of dry mouth and cystic fibrosis (CF), new preclinical research suggests. The study, “Inhibition of cAMP-Phosphodiesterase 4 (PDE4) ... Read more

April 27, 2021April 27, 2021

Coalition Calls for Clear COVID-19 Vaccination Policies

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People living with cystic fibrosis (CF) need clear, aggressive, and science-driven COVID-19 vaccine distribution strategies that prioritize their condition, says a coalition of experts. The Global Registry Harmonization Group (GRHG), ... Read more

April 26, 2021April 26, 2021

Lung Disease Evident in CF Patients in Study Despite ‘Normal’ Lung Function

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Signs of lung disease were evident in most cystic fibrosis (CF) patients with normal lung function in a small study, and related with a higher number of pulmonary exacerbations and longer ... Read more

April 23, 2021April 23, 2021

Resistance Training Favorably Affects Youngsters’ Heart Rate

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A clinical study found that in youth with cystic fibrosis (CF) who are in good physical condition, resistance training favorably regulates heart rate variability (HRV), an indicator of the ability ... Read more

April 22, 2021April 22, 2021

Study Will Assess How Diet, Exercise May Extend Lifespan

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People with cystic fibrosis (CF) generally are living longer and healthier lives than in the recent past. Now, researchers will conduct a five-year study to look into ways to further ... Read more

April 21, 2021April 21, 2021

KB407 In-human Trial Expected After Gene Therapy Found Safe in Animals

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Krystal Biotech is expecting to start a Phase 1 clinical trial by early fall to test KB407 for cystic fibrosis (CF), after the investigational inhaled gene therapy was found safe and ... Read more

April 20, 2021April 20, 2021

Levels of Neutrophil Elastase May Help Predict Disease Severity in CF

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Levels of neutrophil elastase, a pro-inflammatory enzyme normally released by immune cells known as neutrophils, plus a greater diversity and amount of microbes could drive disease severity in cystic fibrosis ... Read more