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May 16, 2019May 16, 2019

Bike Rides, Walkathons, Other Fundraising Events Mark CF Awareness Month

cystic fibrosis, News

When it comes to disease “awareness” days, weeks, and months, 2019 is crammed with hundreds of them. May leads the calendar with 37 such designations, calling attention to everything from ... Read more

May 16, 2019May 16, 2019

Poor Oxygen Conditions May Promote P. aeruginosa Infection Over Other Pathogen in CF, Study Suggests

cystic fibrosis, News

Poor oxygen conditions, a common trait in the lungs of cystic fibrosis (CF) patients, may help Pseudomonas aeruginosa bacteria outcompete other infectious agents, namely Staphylococcus aureus, a study suggests. The ... Read more

May 15, 2019May 15, 2019

Early, Rapid BMI Increase May Affect Overall Growth of CF Children, Study Suggests

cystic fibrosis, News

Rapid weight gain early in life may have a long-term negative impact on the growth of children with cystic fibrosis (CF), a study has found. This finding suggests that ... Read more

May 14, 2019May 14, 2019

Phages, Viruses that Attack Bacteria, Are a Potential Therapy Against Infections, Case Report Suggests

cystic fibrosis, News

The case report of a cystic fibrosis (CF) patient suggests that phages — viruses that naturally infect and kill bacteria — are a potential personalized therapy against infections caused ... Read more

May 13, 2019May 13, 2019

Trial of Nebulized CF Candidate Therapy Completes Single-ascending Dosing

cystic fibrosis, News

The RESTORE-CF clinical trial investigating Translate Bio’s candidate therapy MRT5005 has completed the single-ascending dose regimen in patients with cystic fibrosis (CF), the company announced. The ongoing Phase 1/2 trial (NCT03375047) is testing the safety ... Read more

May 10, 2019May 10, 2019

ABO-401 Gene Therapy Shows Potential to Restore CFTR Function in Preclinical Study

cystic fibrosis, News

Abeona Therapeutics‘ new gene therapy ABO-401 for the treatment of cystic fibrosis (CF) has successfully delivered a functional version of the CFTR gene to the lungs of mice with CF, according to ... Read more

May 9, 2019May 9, 2019

P. aeruginosa Variants Contribute to Increased Local Lung Inflammation in CF Patients, Study Reveals

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Specific Pseudomonas aeruginosa bacteria called mucoid variants, which are linked to poor prognosis of patients with cystic fibrosis (CF), are associated with significantly greater regional lung inflammation, a study ... Read more

May 8, 2019May 8, 2019

NFL’s Boomer Esiason Will Be Keynote Speaker at NASP Annual Meeting

cystic fibrosis, News

Former National Football League quarterback Boomer Esiason, whose son has cystic fibrosis (CF), will be a keynote speaker at the National Association of Specialty Pharmacy’s (NASP) Annual Meeting & ... Read more

May 6, 2019May 6, 2019

Researcher Will Use $3.3M NIH Grant to Develop ‘One-Size-Fits-All’ Inhaled Therapy

cystic fibrosis, News

A pharmaceutical sciences researcher will use a five-year, $3.3 million grant from the National Institutes of Health (NIH) to develop an inhaled therapy for use by all cystic fibrosis (CF) ... Read more

May 2, 2019May 2, 2019

FDA Approves Kalydeco for Treatment of 6- to 12-month-old Infants with Cystic Fibrosis

cystic fibrosis, News

The U.S. Food and Drug Administration (FDA) has approved Kalydeco (ivacaftor) for the treatment of infants from six to 12 months old, who have cystic fibrosis (CF) and at least ... Read more

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