There Are Many Ways to Participate in Cystic Fibrosis Awareness Month
The month of May rolls around and I find myself trying to take the perfect selfie. I want to capture not only my face, but also my percussive Vest device and my nebulizer.
Becoming Visible — Elizabeth Rogers
Elizabeth is a 29-year-old Bay Area-based writer living with cystic fibrosis. She loves cats and exploring the great outdoors.
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Finding My Zen in Animal Crossing
As you may have noticed, the world is having a bit of a moment right now. I started self-isolating as soon as the first case of the new coronavirus appeared in my county, which means I’ve been…
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I’m Thinking About the Future
Sometimes it seems as if everyone knows what they would do in your shoes, and they are happy to tell you so. “If I were you,” they might say, “I wouldn’t even bother with…
Modulating Reality: My Miracle CF Med Was All Hype
I’ve spent most of my life hearing that the cure for cystic fibrosis is just around the corner. Just wait a few more years, they keep saying, and it’s going to be right there. Then a…
Having Cystic Fibrosis Doesn’t Mean Giving Up My Hobbies
When you have cystic fibrosis, having hobbies is an essential part of maintaining mental health. It gives you something else to focus on and to pour yourself into, alleviating your worries and taking your mind off things, at least…
My Sexuality’s Ties to CF
Sexuality is complicated. Sexuality when you have chronic illness is doubly so. Finding out who you are and what you may or may not be attracted to becomes a mess when you factor in antibiotics that can easily affect…
Evolving Toward Becoming Visible
Doctors diagnosed me with cystic fibrosis (CF) at 18 months old and I recently turned 29. It’s safe to say I’ve never known a life without it. Growing up, I became accustomed to treatments and pills, my life punctuated…
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