Living Beyond - a Column by Jennifer Bleecher

This month, my beautiful daughter, Claudia, will celebrate her 29th birthday. I was 24 and living with cystic fibrosis (CF) when I became her mother. It’s now been four years since my double-lung transplant, and I’m currently fighting COVID-19 for the fourth time in four years. As the…

The end of 2024 is upon us, which means it’s time to reflect on the past year and evaluate ourselves and our decisions. It’s also a time for resolution — the promise to implement positive life changes in the new year. Many New Year’s resolutions focus on exercise, with goals…

They say that the older you get, the faster time passes. At 53 years old, I completely agree. As I look back at the columns I’ve written in the past, I can’t believe we’re approaching the holiday season again. Don’t get me wrong — I’m thankful for it.

Many of the thoughts that cross my mind daily are specific to cystic fibrosis (CF). Recently, I’ve recognized that they’re not things that most people, including my family and healthy peers, have to think about. I’m not upset that the following topics are frequently on my mind. It’s just…

I had a virtual call recently with my cystic fibrosis (CF) physician, who’s also a lung transplant expert. More recently, he obtained credentials in palliative care as well. Since my double-lung transplant in 2020, I see him every few months under his palliative care hat. On this virtual…

Here in Pennsylvania, September is my favorite month. The summer humidity is gone, the sun is still warm, but there’s a slight chill in the air that’s new. If you’re observant, you can notice the leaves on the trees are not as vibrant. They start to look more frail as…

Note: This column describes the author’s own experiences with a continuous glucose monitoring device. Not everyone will have the same response. Consult your doctor before using any new medical device. Cystic fibrosis (CF) is largely known as a respiratory disease. It primarily affects the lungs and digestive system,…

I learned last week that my pediatric cystic fibrosis (CF) physician had recently passed away. I say pediatric physician, but I was under his care from birth to age 44. I’m now 53. As I reflect on my experiences with him, I realize the CF patient-doctor relationship is unique…

Cystic fibrosis (CF) is a complex disease that affects each of us differently. However, many outside factors impact our lives in ways healthy people often don’t realize. In this column, I want to spread awareness of one of the many challenges and stressors involved in living with CF:…

It’s utterly amazing to be able to breathe easily again, almost four years after having a double-lung transplant due to advanced cystic fibrosis (CF). It isn’t easy to put the enormity of the feelings into words, even now. Besides the vague discomfort from a scar that runs from…