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I’m beginning to rethink the sources of my fatigue. Yes, sickness and physical activity are still real sources of exhaustion, but I’m realizing I’ve neglected a deeper flavor of struggle.   Many of us sick folk are familiar with the “spoon theory.” The analogy goes…

“Welcome to the Renaissance” is the opening number of a musical comedy I discovered in 2019 called “Something Rotten!” The show follows the Bottom brothers through the development of a new play and addresses the plagiarism that some historians believe Shakespeare was guilty of. The musical, set in 1595,…

The world demands my constant attention. Everything that comes across my news feed is presented as an emergency. The pressure to know the latest and greatest is at an all-time high. That doesn’t help my stress levels, though. It only adds to the growing list of issues I already have…

Burnout. Everyone knows the feeling, especially patients and their advocates. My burnout stems from the ongoing pandemic and the harsh contrast between government mandates and doctor advice. It stems from the quantity and quality of advocacy that I choose to post on social media every day, an activity…

A few weeks ago, I started writing about the U.S. Centers for Disease Control and Prevention (CDC) director’s ableist comment, in which she claimed that masks are the “scarlet letter” of the pandemic. But something about burnout or writer’s block kept me from getting the words in by my…

I recently discovered “Diana: The Musical,” which follows Princess Diana and Prince Charles through their short-lived relationship. Much like Diana herself, the show is severely underappreciated. I identified with Diana immediately, especially the pressure to keep up with enormous responsibility. I receive a lot of praise for my…

Every week, to confront old wounds and maybe even heal, I open my mind so my subconscious can push memories to the surface. I feel the emotions there, recall the senses, and meditate on how they drive me today. Then, I release them. Yesterday, I meditated on humiliating experiences, inviting…

Since my double-lung transplant four years ago, I’ve shared my story in several arenas. I’m passionate about spreading awareness about organ donation and how my life was able to continue because of my donor. Through these speaking engagements, I’ve met incredible people who are connected to organ donation. I’m…

In honor of National Autism Awareness Month, I wanted to write about neurodivergence, a term used when a person’s brain operates differently from what is typical (also known as neurodiversity). A few conditions that fall under the umbrella of neurodivergence include autism, Tourette syndrome, ADHD, dyslexia, and generalized anxiety.

I’m just going to come right out and say it: I don’t want to write about being chronically ill this week. Specifically, I don’t want to be chronically ill this week.  I know this isn’t revolutionary; what person grappling with cystic fibrosis and related diabetes, and all the…