Columns

‘Strangers Like Me’: An Open Letter to the CF Community

Movie musicals are the hottest trend in the musical theater community right now. “Dear Evan Hansen” and “Tick, Tick… Boom!” are just two of the adaptations, and it’s rumored that “Tarzan” is the next show to move from stage back to the big screen. Fans of the 1999 animated Disney…

Coping Tips for the Tail End of a COVID-19 Winter

It doesn’t snow much here in my home state of Alabama. It’ll just get cold enough to shock the system with wildly fluctuating temperatures. It gets warm in February, and the flowers will think about blooming; in fact, my mom’s daffodils are blooming right now. But with the vernal equinox…

‘Her Voice’: How Cystic Fibrosis Affects Vocals

“Her Voice” from Disney’s “The Little Mermaid” is one of the most beautiful songs. In the Broadway show it was sung by Sean Palmer as Prince Eric, and his voice hits me right in the hormones: “And her voice It’s sweet as angels sighing And her voice…

The Importance of Celebrating National Donor Day

I didn’t know how impactful organ donation was until it personally affected my life. I first learned the details of it through my evaluation for a double lung transplant. Since that surgery four years ago, I’ve frequently witnessed the impact the process has on both the recipient and the donors’…

Sometimes It’s Best Just to Listen

I guess I would say I am a problem solver by nature. When it comes to my loved ones, I am more so. I am protective, perhaps overly so! When I hear loved ones complain about a problem in their lives, a little voice inside my head says, “You need…

Person-first Language Doesn’t Always Matter

“Do people with cystic fibrosis really call themselves ‘CFers’?” a friend once asked.  “Some do, some don’t.” I told her about the shorthand terms I’ve seen used in the community, such as “cysters” and “fibros.”  Personally, I’ve always appreciated those monikers for their playfulness, which among many…

Thanks to My Transplant, I Can Dream About the Future

I never really dreamed about my future until after my double-lung transplant in 2017. My friends who are also transplant recipients inspire me to dream bigger as we navigate this new world together. Although it’s been over four years, dreaming can still feel risky. But the more time that passes,…

A Spoonful of Sugar: My Diabetes Diagnosis, Part 2

Second in a series. Read part one.  In my previous column, I described the lead-up to my diabetes diagnosis. Let’s resume where we left off: in an isolated room at CarolinaEast Medical Center’s emergency department (ED) in New Bern, North Carolina. Upon my admission for an extremely high blood…