I learned about pulmonary rehabilitation during my evaluation for a double-lung transplant in 2015-16. I didn’t know that a program existed to help me learn how to navigate life with low lung function. I had mixed feelings about joining, but soon found that it was the key to better…
Columns
About 10 years ago, I interviewed my pulmonologist for a speech class I was taking. I asked him if he thought there’d ever be a cure for cystic fibrosis. He responded with an emphatic yes; not only did he believe there’d be a cure, he believed we’d both live to…
“Is one a crusader or ruthless invader?/ It’s all in which label is able to persist.” That’s one of my favorite lines from “Wonderful,” a lesser-known song in the Broadway smash “Wicked.” I was recently reminded of this song when one of my best friends, a fellow cystic fibrosis…
There’s a person I really like. (I’m her boyfriend, it’s nice.) And when I really like someone, I drop my defenses. We were discussing the building blocks of our identity, and I realized mine mostly derive from cystic fibrosis, deafness, and lung transplant. I wondered what it would look like…
Living with cystic fibrosis and undergoing a double-lung transplant have had profound effects on my character. I’ve been graced with the ability to dig deep amid pain and suffering and find golden nuggets of wisdom. The rarest attribute I’ve developed on my health journey has been a deep level…
Movie musicals are the hottest trend in the musical theater community right now. “Dear Evan Hansen” and “Tick, Tick… Boom!” are just two of the adaptations, and it’s rumored that “Tarzan” is the next show to move from stage back to the big screen. Fans of the 1999 animated Disney…
It doesn’t snow much here in my home state of Alabama. It’ll just get cold enough to shock the system with wildly fluctuating temperatures. It gets warm in February, and the flowers will think about blooming; in fact, my mom’s daffodils are blooming right now. But with the vernal equinox…
“Her Voice” from Disney’s “The Little Mermaid” is one of the most beautiful songs. In the Broadway show it was sung by Sean Palmer as Prince Eric, and his voice hits me right in the hormones: “And her voice It’s sweet as angels sighing And her voice…
I didn’t know how impactful organ donation was until it personally affected my life. I first learned the details of it through my evaluation for a double lung transplant. Since that surgery four years ago, I’ve frequently witnessed the impact the process has on both the recipient and the donors’…
Does my disease define me? I’ve been battling this complex question since I was diagnosed with cystic fibrosis at age 5. Most of my CF friends would say no. The disease is a part of them, but it doesn’t make up their entire identity. While I’d never want to be…
Your CF Community

Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Recent Posts
- Why I choose to write about my journey with CF and transplant
- Plasmid gene therapy may work across CF mutations, new study suggests
- The pulmonary exacerbation and hospital stay that changed everything
- Trikafta linked to fewer hospital stays for cystic fibrosis complications
- CF transplant timing not tied to severe COVID-19 outcomes: Study