Brad Dell is a Deaf 27-year-old with cystic fibrosis. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He now lives in Hawaii, where he was raised. Usually he's traveling the world, chugging coffee, mentoring college students, or studying theology. Otherwise, he's working as the director of columns at BioNews, the publisher of CF News Today. (OK, he's still drinking coffee while he works.) He writes to undo the taboo surrounding lung transplantation. Catch him on Instagram at @coffee.cats_Winter 2016-17: Sabrina Santos We called each other twins. Sabrina, like me, was a nerdy, faithful, coffee-loving journalist. She also had cystic fibrosis, Mycobacterium abscessus, deafness, and an urgent need for lung transplantation. Unlike me, she was fearless. Sabrina wielded titanic power. Her radiant eyes could shatter…
“Ahhh, so lucky! Enjoy your vacation.” Many people thought hospitalizations were times to sit around and cruise the internet; get treated like royalty and served wine. (Nah, I only got rubbing alcohol.) The response was rarely, “I hope you feel better,” or, “Let me know if I can…
I come from the generation of “Netflix and chill,” except for me, it wasn’t a sexual innuendo. My college life consisted mostly of watching Netflix and chilling; sitting on the couch with my girlfriend at the time, and binge-watching TV shows. I was known for being a successful…
I’ve been in sticky situations with dude doctors. With many male doctors, it’s a CF battle. We’re overcome by politics and competition; tackling for command and barking orders at each other. Yes, it’s mutual because I’m a stubborn dude, too. That said, I’ve had some incredible docs who…
September 2016 Every bone, tooth, and vein in my body trembled. The oxygen cannula hugging my nostrils slipped on sweat. I sat at a cold table with my pre-transplant coordinator who’d subjected me to a presentation that vividly, gruesomely, described the lung transplant process.
July 28, 1 p.m. We’re laughing. Some of us literally poured blood, sweat, and tears to be there laughing. Transplant recipients, like me. Others thought they’d never see their loved ones laugh again, much less years later. Caregivers. Others doubted they’d ever laugh again after they lost the…
One year ago, I was six months post-lung transplant. I was still fumbling about, trying to sort out my new body and aspirations to help other CFers with my second chance at life. I didn’t know how to inspire others to strength if I could barely walk. I…
“Living On a Prayer” played as I pulled into an intersection. From the corner of my eye, I saw a car dart onto my street. A screech and a smash. T-boned, rammed into my driver door. Shrapnel-like glass blasted through the air, trimming a sliver of flesh from my…
“It’s all come full circle,” I repeated, rather exhaustingly, about two dozen times over the past two weeks when visiting family in Florida. Exactly two years ago, my family learned we’d have to leave Hawaii, my home for 12 years, to get my lung transplant at the University…
On July 2, 2016, I awoke from a nightmare with a wheeze. In the movies, people awaken from nightmares with a gasp. But gasping takes air. I’d been suffocating for days. Days of tripping through a horrific hallucination that may sound funny, but only if you didn’t live…
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